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Indeed it is a dilemma.  My husband was diagnosed while he was still working
and we knew well that his employers would not look kindly on an employee
with a disease like Parkinson's.  So, while he was in service, no one except
a few close friends and family knew about it.  And yet, if we do not talk
about it, the enormous ignorance about the illness remains.

Moneesha



2008/9/3 Kathleen Cochran <[log in to unmask]>

> It's something of a dilemma, isn't it? People with Parkinsons who are
> employed, for instance, might not want to raise awareness of the full range
> of PD's possible effects.
>
> Kathleen
>
> 2008/9/2 rayilynlee <[log in to unmask]>
>
> > Isn't Parkinsons just having tremors?
> > Created by katmarie
> >
> > "I just got back from an annual family campout. There is about 40 of us
> > that go. Well we were all sitting around and one of my aunts asked how I
> was
> > doing with my Parkinsons. I made a comment about rigidity,confusion etc.
> One
> > of my aunts said " I thought PD was just tremors. I could have come off
> my
> > chair. I started to rattle off some my symptoms and the somehow the
> > conversation got lost. Don't get me wrong. My family are wonderful
> > supportive,loving,people. I guess I forgot how ignorant most people are
> > about the disease. That just shows how much more media exposure PD needs.
> I
> > want to send an email to them all, with an explantion of the disease and
> > symptoms but then It would seem like I wanted sympathy. Maybe for X-mas I
> > will send them all an emial card with PD information."
> >
> > I didn't write this, Ray
> >
> > Rayilyn Brown
> > Director AZNPF
> > Arizona Chapter National Parkinson Foundation
> > [log in to unmask]
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to: mailto:
> > [log in to unmask]
> > In the body of the message put: signoff parkinsn
> >
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

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