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Hi Dianne, please do provide info on the brace. Thank You, Ken ----- Original Message ----- From: "Cooperman, Dianne (N-VIRTUAL DEVELOPMENT)" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, September 24, 2008 10:17 AM Subject: dystonia > Re: Dystonia > > I had very severe dystonia in my right foot and ankle when I was first > diagnosed with PD 15 mos. ago and before I started on medicine. > I consulted several neurologists about getting a brace but they all told > me it would not stop the dystonia, instead my foot would keep trying to > turn in the brace and that would probably abrade the skin. > I was fortunate to be given a referral to the NIH Rehab Dept in > Bethesda, near my home, where I was given a sturdy plastic brace (from > foot to mid- calf) with Velcro straps. I wore it day (and many nights) > for almost two weeks. At the end of two weeks I found that my errant > dystonic muscles had conceded the fight. The dystonia in my ankle has > never returned. > I have no idea if that could work for anyone else but it wouldn't hurt > to try. If anyone wants to know the brand of brace -- it was not > custom-made -- I would be happy to check and get back to them. > > Dianne Cooperman > Rockville, MD > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn