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the brand is what i was asking for. Thanks ----- Original Message ----- From: "Sandra Way" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, September 28, 2008 4:11 AM Subject: Re: dystonia > My neurologists in Sydney have also told me that a brace would not stop > my foot from twisting. After a few falls recently, my latest neurologist > has started me on Amantadine (Symmetrell) in addition to my Stalevo > tablets. It's only been a few days but the addition of this old drug does > seem to be helping. I have tried walking without my walking stick today > and i was stable enough.My dystonia was triggered by my dyskinesia > apparently and controlling the dyskinesia seems to have helped. > > I was interested to hear about the brace as well as before this current > treatment, my podiatrist had suggested surgery to correct the muscles -a > bit extreme I thought. > > Yesterday, I watched Michael Moore's movie " Sicko" about the US health > insurance companies. In Australia, we also have universal free health > care (like the UK,Cuba, France and Norway) and am grateful to our system > here. To those of you in the US, whomever you decide to vote for in your > US election, you really need to ensure that sick people like us are > looked after by your government and no one is denied care because they > can't afford it. > > > Regards > > Sandra > > > On 28/09/2008, at 5:18 PM, kbachn wrote: > >> Hi Dianne, >> >> please do provide info on the brace. >> >> Thank You, Ken >> >> >> ----- Original Message ----- From: "Cooperman, Dianne (N-VIRTUAL >> DEVELOPMENT)" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Wednesday, September 24, 2008 10:17 AM >> Subject: dystonia >> >> >>> Re: Dystonia >>> >>> I had very severe dystonia in my right foot and ankle when I was first >>> diagnosed with PD 15 mos. ago and before I started on medicine. >>> I consulted several neurologists about getting a brace but they all >>> told >>> me it would not stop the dystonia, instead my foot would keep trying to >>> turn in the brace and that would probably abrade the skin. >>> I was fortunate to be given a referral to the NIH Rehab Dept in >>> Bethesda, near my home, where I was given a sturdy plastic brace (from >>> foot to mid- calf) with Velcro straps. I wore it day (and many nights) >>> for almost two weeks. At the end of two weeks I found that my errant >>> dystonic muscles had conceded the fight. The dystonia in my ankle has >>> never returned. >>> I have no idea if that could work for anyone else but it wouldn't hurt >>> to try. If anyone wants to know the brand of brace -- it was not >>> custom-made -- I would be happy to check and get back to them. >>> >>> Dianne Cooperman >>> Rockville, MD >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn