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Diane I would be interested in trying that brace. I have dystonia in my left leg and botox injections don't work anymore and that added to the back injury caused by my fall make walking almost impossible. Thanks, Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: "Cooperman, Dianne (N-VIRTUAL DEVELOPMENT)" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, September 24, 2008 7:17 AM Subject: dystonia > Re: Dystonia > > I had very severe dystonia in my right foot and ankle when I was first > diagnosed with PD 15 mos. ago and before I started on medicine. > I consulted several neurologists about getting a brace but they all told > me it would not stop the dystonia, instead my foot would keep trying to > turn in the brace and that would probably abrade the skin. > I was fortunate to be given a referral to the NIH Rehab Dept in > Bethesda, near my home, where I was given a sturdy plastic brace (from > foot to mid- calf) with Velcro straps. I wore it day (and many nights) > for almost two weeks. At the end of two weeks I found that my errant > dystonic muscles had conceded the fight. The dystonia in my ankle has > never returned. > I have no idea if that could work for anyone else but it wouldn't hurt > to try. If anyone wants to know the brand of brace -- it was not > custom-made -- I would be happy to check and get back to them. > > Dianne Cooperman > Rockville, MD > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn