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me too, ankle pains there is a burning sensation pl do advise what kind of brace were you using, cheers [log in to unmask] On Thu, Sep 25, 2008 at 5:57 PM, <[log in to unmask]> wrote: > > > Dianne, I would very much like to know what kind of brace you used. My > ankle is killing me! You can e-mail me direct at [log in to unmask] > (mailto:[log in to unmask]) if you wish. Thanks and good luck you. > Roberta > > > In a message dated 9/25/2008 2:10:21 A.M. Eastern Daylight Time, > [log in to unmask] writes: > > Re: Dystonia > > I had very severe dystonia in my right foot and ankle when I was first > diagnosed with PD 15 mos. ago and before I started on medicine. > I consulted several neurologists about getting a brace but they all told > me it would not stop the dystonia, instead my foot would keep trying to > turn in the brace and that would probably abrade the skin. > I was fortunate to be given a referral to the NIH Rehab Dept in > Bethesda, near my home, where I was given a sturdy plastic brace (from > foot to mid- calf) with Velcro straps. I wore it day (and many nights) > for almost two weeks. At the end of two weeks I found that my errant > dystonic muscles had conceded the fight. The dystonia in my ankle has > never returned. > I have no idea if that could work for anyone else but it wouldn't hurt > to try. If anyone wants to know the brand of brace -- it was not > custom-made -- I would be happy to check and get back to them. > > Dianne Cooperman > Rockville, MD > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > > > > > > > > **************Looking for simple solutions to your real-life financial > challenges? Check out WalletPop for the latest news and information, tips > and > calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn