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My neurologists in Sydney have also told me that a brace would not stop my foot from twisting. After a few falls recently, my latest neurologist has started me on Amantadine (Symmetrell) in addition to my Stalevo tablets. It's only been a few days but the addition of this old drug does seem to be helping. I have tried walking without my walking stick today and i was stable enough.My dystonia was triggered by my dyskinesia apparently and controlling the dyskinesia seems to have helped. I was interested to hear about the brace as well as before this current treatment, my podiatrist had suggested surgery to correct the muscles -a bit extreme I thought. Yesterday, I watched Michael Moore's movie " Sicko" about the US health insurance companies. In Australia, we also have universal free health care (like the UK,Cuba, France and Norway) and am grateful to our system here. To those of you in the US, whomever you decide to vote for in your US election, you really need to ensure that sick people like us are looked after by your government and no one is denied care because they can't afford it. Regards Sandra On 28/09/2008, at 5:18 PM, kbachn wrote: > Hi Dianne, > > please do provide info on the brace. > > Thank You, Ken > > > ----- Original Message ----- From: "Cooperman, Dianne (N-VIRTUAL > DEVELOPMENT)" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, September 24, 2008 10:17 AM > Subject: dystonia > > >> Re: Dystonia >> >> I had very severe dystonia in my right foot and ankle when I was >> first >> diagnosed with PD 15 mos. ago and before I started on medicine. >> I consulted several neurologists about getting a brace but they all >> told >> me it would not stop the dystonia, instead my foot would keep >> trying to >> turn in the brace and that would probably abrade the skin. >> I was fortunate to be given a referral to the NIH Rehab Dept in >> Bethesda, near my home, where I was given a sturdy plastic brace >> (from >> foot to mid- calf) with Velcro straps. I wore it day (and many >> nights) >> for almost two weeks. At the end of two weeks I found that my errant >> dystonic muscles had conceded the fight. The dystonia in my ankle has >> never returned. >> I have no idea if that could work for anyone else but it wouldn't >> hurt >> to try. If anyone wants to know the brand of brace -- it was not >> custom-made -- I would be happy to check and get back to them. >> >> Dianne Cooperman >> Rockville, MD >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn