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I am passing on my response to Nihal's email because it  contains a call for 
early and sustained exercise:
Ray

Dear Nihal

Thank you for emailing me and  putting such confidence in me.  I must tell 
you I did not write the exercise article, although I agree with it.  I 
labeled it "Source unknown" because I got it from a blog with no author.

I have had PD 12 years now, was diagnosed at age 60.  In those first early 
years I did well, treadmilling an hour a day.  I liked to  listen to 
Dixieland Jazz music when I walked, it helped pass the time.  Although I 
tried Sinemet (which worked only once) and other PD meds, they didn't help 
so I don't take any PD meds.

In 1997 I went to Australia-New Zealand without a cane and walked from the 
hotel to the  Sydney Opera House.  In 1999 my niece and I went to Egypt. 
Although I had a cane I zipped around the tombs and pyramids.  I am a 
retired history teacher who always loved to travel.  If I could improve to 
my 1999 status I would go see all the great people I have met online.  I 
cannot travel now.

In summer of 2003 I had two DBS brain surgeries which control my tremors. 
In April 2008  I fell on my tailbone and cannot treadmill or walk in my 
swimming pool as it makes my back worse.  I can't even stand for a few 
minutes to use the 2 putting greens in my backyard.

MY ADVICE TO ALL NEWLY DIAGNOSED PWP:  IF YOU CAN,  KEEP UP THAT INITIAL 
EXERCISE PROGRAM AND BY ALL MEANS DON'T FALL - YOU CAN REALLY HURT YOURSELF.

Sometime around 2001 I got an electric "Jazzy" wheelchair because my doc was 
afraid I would fall.  This may have been a mistake as I can barely walk now.

Nihal, one of the many nasty things about PD  is the "unknowns" we face. 
Every one of us is different with respect to reaction to meds and progress 
of the disease.  Although that is a negative, it may also be a positive. 
For example, just because I am losing my voice, it doesn't  mean you will. 
I do think we have a window of opportunity at the beginning to use exercise 
as much as we can.  I wish I had maintained it no matter what.  So be good 
to yourself.  Select what you "like" best and what you think you can stick 
to.  It is good you have family support.

I just ask myself, what can I still do?  One thing is posting  PD info with 
Diane Wyshak's help.  This was not the retirement I had planned on, but I do 
have enough to do.

You are not alone and I'm sure you will make many online friends.  I will 
still hold onto the hope I will meet you someday in Sri Lanka.  Thank you 
for your kind invitation.  In the meantime, don't hesitate to contact me and 
keep the List up to date on how you are doing.

Ray

Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
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