 |
 |
I think you're hitting the nail right on the head Raylin... Nic 56/14 On Sun, Oct 19, 2008 at 7:35 PM, rayilynlee <[log in to unmask]> wrote: > Dear Jennifer: > > While waiting for responses that never arrive, I've been thinking about > Schuller's "misdiagnosis". He may have mixed up Parkinson's disease with > trigeminal neuralgia, Dr. Jannetta's specialty. > > In his video announcement, Schuller said that his "friend" always thought > it (PD) had something to do with where the blood meets the nerve. > Parkinson's disease symptoms are supposedly caused by lack of dopamine and > have nothing to do with "where the blood meets the nerve", but trigeminal > neuralgia does. The most succcessful treatment for trigeminal neuralgia is > brain surgery (available for the last 20 to 30 years) to wrap the blood > vessel in the brain that touches the trigeminal nerve. The throbbing of > this blood vessel on the nerve is what causes the excruciating pain > characteristic of trigeminal neuralgia. > > How do I know this? My mother had tic doloreaux or trigeminal neuralgia > and backed out of this surgery over 15 years ago because the surgeon who > would be assisting at UC San Diego yawned in the pre-op session. > > If you go to Jannetta's website all his background is in trigeminal > neuralgia, not Parkinson's, and I read somewhere he fixed the "twitching in > some people's faces". Here again, a "tic" (which in TN would be the > twitching of a facial nerve, they say the nerve behaves like a live wire) > may have been mistaken for Parkinson's tremors. People wiith trigeminal > neuralgia do not have facial twitches or tics, but unbearable pain. > > Now, how did Schuller manage to scramble all this information? Runaway > positive thinking? He says God helped Jannetta find the cure for PD. > Either these guys are getting false info from God or they don't understand > medical science. My guess would be that Jannetta does understand, but > Schuller's business is faith, not facts. He is a doctor of divinity, not > medicine. I would also venture to guess that his life has not been touched > by serious illness. > > It is just astounding how ignorant people are, especially people in > positions of power and influence. Although people in the Parkinson's > community are hurting from this false claim, the worst thing is that it > slows down actually finding a cure because people tend to marginalize the > problem when they hear cures have already been found. > > Dr. Schuller owes us an explanation and an apology. > > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn