thanks, Susan. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: "Susan Kline" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, October 16, 2008 5:26 PM Subject: Re: Joan's Schuller letter re PD cure Hi Ray, Here you go: Dr. Robert H. Schuller Crystal Cathedral Ministries P.O. Box 100 Garden Grove, CA 92842 Best, Susan > Date: Wed, 15 Oct 2008 09:56:55 -0700> From: [log in to unmask]> Subject: > Re: Joan's Schuller letter re PD cure> To: [log in to unmask]> > > Susan> > Would you have an address for Schuller so we can write to him?> > > Thanks, Ray> Rayilyn Brown> Director AZNPF> Arizona Chapter National > Parkinson Foundation> [log in to unmask]> ----- Original Message ----- > > From: "Susan Kline" <[log in to unmask]>> To: > <[log in to unmask]>> Sent: Tuesday, October 14, 2008 7:36 AM> > Subject: Re: Joan's Schuller letter re PD cure> > > Dear Listserv Members, > Starting this past Sunday while I was out all day at > an event for > Parkinson's, I began getting calls of excitement about Dr. > Schuller's > announcement. I got the calls from people not prone to getting > overly > convinced at first announcements of the many claims that can be out > > there. So first thing yesterday, after more calls coming my way, I called > > the Crystal Cathedral and identified myself. The person answering the > phone > apparently had been getting calls...well, you can imagine! She > said Dr. > Schuller issued a statement that there was no more information > yet. I > jumped on the word "yet"...and then she said that the program was > a > rebroadcast of a previously pre-recorded program. She could not give > me the > date of the original broadcast...but this is somehow ringing a > bell with me > that this was not very recent. To have to report this > cruel, cruel follow > up news to those I care about...and especially to > have to cradle in my arms > my disappointed PWP loved one who heard the > Dr. Schuller cliff hanging > statement on television....has prompted me to > also write a letter to the > senior Dr. Schuller. He was completely out of > line in the first place to > make such a reckless statement without > considering the consequences and > impact this would have on a most brave > group of people suffering from PD and > who cling to any bit of realistic > hope. But then, to not have anyone > monitor and edit previous broadcasts > is completely unacceptable. Leaders > who have won the confidence of those > listening to them have the moral > obligation to consider the hearts and > hope of those people who trust them. > Reckless carrot dangling without > any disclaimer was quite damaging, > regardless of best intentions, and, > therefore, I support Joan's comments. > I urge others to contact Dr. > Schuller as I will. The Parkinson's Community > deserves an explanation > and a most humble apology. Still believing in > verifiable research and > realistic hope for victory,Susan KlineExecutive > DirectorThe Hazel > Hutchman Memorial Neuroscience CenterReseda, California> > > Date: Tue, 14 > Oct 2008 09:35:51 +0100> From: [log in to unmask]> > > Subject: Re: > Joan's Schuller letter re PD cure> To: > > [log in to unmask]> > > My response - if genuine - come in > > through the front door with > proof, don't > sneak around like a cheap > > confidence trickster.> > > Quoting rayilynlee <[log in to unmask]>:> > > > > Joan would like to hear > your response> > > > Rayilyn Brown> > Director > > AZNPF> > Arizona > Chapter National Parkinson Foundation> > > > [log in to unmask]> > ----- > Original Message ----- > > From: Joan > > Blessington Snyder> > To: > rayilynlee> > Sent: Sunday, October 12, 2008 > > 8:07 PM> > Subject: about > rev. schullers cure> > > > > > i wanted to know > > what the listserv > thinks about it.> > > > Dear Sir:> > I think you do an > > tremendous > disservice to your parishioners and also to the> > > > entire > > > Parkinson's community by announcing from your pulpit that there is a > > > > > "cure" for Parkinson's Disease.> > > > I think that the way you > pronounced > > this news was steeped in innuendos and > > secrecy: not > naming the > > researcher, not saying which national PD foundation > > was > sent his > > "triple checked" paper and then not even being clear about > when> > > > he > > would appear on your show.> > > > Perhaps you do not > understand just what > > is at stake here for a desperate > > group of > people who live with this > > damn disease daily-for you to actually > > > drop this type of verbal > > bombshell and then to not explain yourself is > > > unconscionable. It makes > > my life just that much harder as an > advocate for > > awareness and > > fundraiser for PD research.> > > > Now > that people have heard it from you, > > they will assume that this another > > > thing they can cross off their list > > of worrisome things to think > about and > > assume that all is well in that > > little corner of their > world. If this man > > really has made a > > breakthrough in his research, > it will take many years for > > his > > treatment to trickle down to the > ranks of the patients like myself (dxed> > > > > > for 18 yrs) . And > people will still be getting this dreadful > > diagnosis > > daily.> > > > > I don't know what you can do to repair the > > damage that your reckless > > > comments have already done...but I hope that > > you can resolve this > situation > > quickly.> > Respectfully,> > > > Joan > > Blessington Snyder > > > > > > > > ----------------------------------------------------------------------> > > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask]> > In the body of the message put: > > > signoff parkinsn> > > > > > > > > > ----------------------------------------------> This mail sent through > > > http://www.ukonline.net> > > > > ----------------------------------------------------------------------> > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask]> In the body of the message put: > > > signoff parkinsn> > _________________________________________________________________> Check > the weather nationwide with MSN Search: Try it now!> > http://search.msn.com/results.aspx?q=weather&FORM=WLMTAG> ----------------------------------------------------------------------> > To sign-off Parkinsn send a message to: > mailto:[log in to unmask]> In the body of the message put: > signoff parkinsn > > > ----------------------------------------------------------------------> > To sign-off Parkinsn send a message to: > mailto:[log in to unmask]> In the body of the message put: > signoff parkinsn _________________________________________________________________ Search from any Web page with powerful protection. 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