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Good for you, Joan! Do I need to elaborate? Thanks. Scott Scott E. Antes Northern Arizona University Department of Anthropology PO Box 15200 Flagstaff, AZ 86011 ________________________________________ From: Parkinson's Information Exchange Network [[log in to unmask]] On Behalf Of rayilynlee [[log in to unmask]] Sent: Monday, October 13, 2008 11:37 AM To: [log in to unmask] Subject: Joan's Schuller letter re PD cure Joan would like to hear your response Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: Joan Blessington Snyder To: rayilynlee Sent: Sunday, October 12, 2008 8:07 PM Subject: about rev. schullers cure i wanted to know what the listserv thinks about it. Dear Sir: I think you do an tremendous disservice to your parishioners and also to the entire Parkinson's community by announcing from your pulpit that there is a "cure" for Parkinson's Disease. I think that the way you pronounced this news was steeped in innuendos and secrecy: not naming the researcher, not saying which national PD foundation was sent his "triple checked" paper and then not even being clear about when he would appear on your show. Perhaps you do not understand just what is at stake here for a desperate group of people who live with this damn disease daily-for you to actually drop this type of verbal bombshell and then to not explain yourself is unconscionable. It makes my life just that much harder as an advocate for awareness and fundraiser for PD research. Now that people have heard it from you, they will assume that this another thing they can cross off their list of worrisome things to think about and assume that all is well in that little corner of their world. If this man really has made a breakthrough in his research, it will take many years for his treatment to trickle down to the ranks of the patients like myself (dxed for 18 yrs) . And people will still be getting this dreadful diagnosis daily. I don't know what you can do to repair the damage that your reckless comments have already done...but I hope that you can resolve this situation quickly. Respectfully, Joan Blessington Snyder ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn