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yes, I would like to comment: Reverend Schuller owes the Parkinson's community a full and public explanation of his claim that Dr. Jannetta had discovered a cure for Parkinson's disease. We expect more from him than a "misunderstanding" of what a cure would mean. It would mean we get our lives back, lives that have been stolen by this cruel disease. His very careless statements have done much more than dash our hopes and feelings. When a person of power and influence makes such claims people listen and it tends to marginalize the issue. People see no need to work for cures when Schuller says one has been found. That is what will be remembered, not that it was a misunderstanding on his part. Reverend Schuller needs to say this and apologize publically this Sunday from the pulpit. He needs to demonstrate an understanding of the gravity of his responsibility to tell the truth. Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: <[log in to unmask]> To: "rayilynlee" <[log in to unmask]> Sent: Tuesday, October 21, 2008 11:16 AM Subject: Re: Fw: Schuller's "misdiagnosis" > Hi Rayilyn, > Just got a note from a spokesperson for Dr. Jannetta calling Schuller's > announcement a misunderstanding and acknowledging he had not found a cure. > I'm working on a story now. Would you like to comment? > Jennifer Muir > Consumer Health Reporter > The Orange County Register > (714) 796-7813 > Cell: (714) 510-7459 > Read my blog at www.ocregister.com/healthyliving > > > > "rayilynlee" > <[log in to unmask] > et> To > <[log in to unmask]> > 10/20/2008 12:51 cc > PM > Subject > Fw: Schuller's "misdiagnosis" > > > > > > > > > > > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > ----- Original Message ----- > From: rayilynlee > To: [log in to unmask] > Cc: parkinsn ; [log in to unmask] ; [log in to unmask] ; [log in to unmask] ; > Joan Snyder ; Don C. Reed ; Diane Wyshak ; Janet Vernon > Sent: Sunday, October 19, 2008 10:35 AM > Subject: Schuller's "cure for Parkinson's"; > > Dear Jennifer: > > While waiting for responses that never arrive, I've been thinking about > Schuller's "misdiagnosis". He may have mixed up Parkinson's disease with > trigeminal neuralgia, Dr. Jannetta's specialty. > > In his video announcement, Schuller said that his "friend" always thought > it (PD) had something to do with where the blood meets the nerve. > Parkinson's disease symptoms are supposedly caused by lack of dopamine and > have nothing to do with "where the blood meets the nerve", but trigeminal > neuralgia does. The most succcessful treatment for trigeminal neuralgia > is > brain surgery (available for the last 20 to 30 years) to wrap the blood > vessel in the brain that touches the trigeminal nerve. The throbbing of > this blood vessel on the nerve is what causes the excruciating pain > characteristic of trigeminal neuralgia. > > How do I know this? My mother had tic doloreaux or trigeminal neuralgia > and backed out of this surgery over 15 years ago because the surgeon who > would be assisting at UC San Diego yawned in the pre-op session. > > If you go to Jannetta's website all his background is in trigeminal > neuralgia, not Parkinson's, and I read somewhere he fixed the "twitching > in > some people's faces". Here again, a "tic" (which in TN would be the > twitching of a facial nerve, they say the nerve behaves like a live wire) > may have been mistaken for Parkinson's tremors. People wiith trigeminal > neuralgia do not have facial twitches or tics, but unbearable pain. > > Now, how did Schuller manage to scramble all this information? Runaway > positive thinking? He says God helped Jannetta find the cure for PD. > Either these guys are getting false info from God or they don't understand > medical science. My guess would be that Jannetta does understand, but > Schuller's business is faith, not facts. He is a doctor of divinity, not > medicine. I would also venture to guess that his life has not been > touched > by serious illness. > > It is just astounding how ignorant people are, especially people in > positions of power and influence. Although people in the Parkinson's > community are hurting from this false claim, the worst thing is that it > slows down actually finding a cure because people tend to marginalize the > problem when they hear cures have already been found. > > Dr. Schuller owes us an explanation and an apology. > > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn