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thanks Kathleen. I tried several support groups and did not care for them. Same thing when I had cancer - it was very depressing!! Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: "Kathleen Cochran" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, November 15, 2008 8:00 AM Subject: Re: I have just been diagnosed with Parkinson's >I believe support groups are not for everyone and can be counterproductive. > A positive attitude is of paramount importance in living with this > disease, > and support groups can undermine that. It's next to impossible to look at > someone whose condition is worse than yours and not imagine that this is > your future. That is not only dispiriting, but also wrong. PD is > notoriously > variable in symptoms and progression from one person to the next. You > can't > predict based on someone else's experience what your course will be. > > That said, some people thrive on support groups. > > I also think those who love and care for PD patients may benefit from > support groups at least as much as patients do. > > Kathleen > > 2008/11/14 Gerry Haines <[log in to unmask]> > >> >> In a message dated 11/12/2008 2:00:33 A.M. Eastern Standard Time, >> [log in to unmask] writes: >> >> The most important thing a newly diagnosed Parkinson's patient can do is >> to >> find a support group. I know that it can be hard to see how PD affect >> those >> >> who suffer long term disease, but people in a support group generally >> know >> where the best movement disorder specialists practice. It is the one >> regret >> I have when I look back on my husband's PD journey (which lasted 28 >> years). >> We wasted years looking for the 'right' neurologist when that fellow >> practiced right under our noses not more than 15 miles away. My husband >> suffered unnecessarily because he was afraid to go to a support group. >> >> >> >> Been there have done that. Have to agree, except I think a good neuro. >> is >> first., I lost my husband in April, after 22 years of dealing with this >> disease. I have advocated, spoken, been everywhere trying to find a >> cure. >> I run >> a support group, and they are wonderful, but Brig would not go either >> for >> the >> first 7 years. Just please take an active part. >> >> >> Gerry Haines >> Pennsylvania State Coordinator. >> Parkinson's Action Network >> "Do something good for someone you least like today." >> St. Anthony of Padua >> >> **************Get the Moviefone Toolbar. Showtimes, theaters, movie news >> & >> more!( >> http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=htt >> p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn