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Your story broke my heart. I have PD (14 years) and sometimes think I am the person to be most pitied in this journey. But I can only imagine how it must feel to see your loved one suffering so and all you can do to stop it is watch. And you are so right to do what you can by seeking new treatments. This ban on embryonic stem cell (ESC) research was really a big issue. One of the first things Obama has said he would do is reverse Bush's ban - specifically, so we can use the excess embryos left over at in vitro clinics. These can only be used with the permission of the owners, too. And the option of their fate was to be treated as medical waste. And anyone wanting to "adopt" an embryo could still do so. This ban reversal should put a stop to some very important legislation where anyone using ESC would be fined and thrown in jail. I believe stem cell research holds great promise, but here's a reality check - it isn't going to happen overnight. Although private research in this area has been going on during this ban, we still have a long way to go. But as the old saying goes, "Rome wasn't built in a day," but somebody had to lay that first stone - and it takes a village of stone layers to raise a building. (hmmmm - why does that sound familiar? lol Peggy -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of angela hamon Sent: Sunday, November 16, 2008 2:38 AM To: [log in to unmask] Subject: Response to:::Research information? My opinion is very subjective. . . My daughter was diagnosed with parkinsonism at 15 due to head and neck injury. at age 17 1/2 she received a series of <SC therapy> injections that caused bruising, soreness, very mild nausea, and apparently, improved memory, learning and concentration, relief of depression, relief of drooling and difficulty swallowing. and lack of falling, these effects lasted a strong 6-8 months and gradually she returned to her original poor functioning within 14 months after treatment. . . . I cannot failry suggest what would happen if she hd more treatments, but the trials ended and our President vetoed funding for further research. . .My daughter wll be 21 in a couple of months and just had pins placed in her arm because of a terrible fall. She is upbeat but it's difficult for her to do ordinary things. She was denied disability and denied health insurance based ON her disability. I have to add this: I am NOT a doctor. I am her highly emotional mother. I believe these treatments, from the trial I saw, hold great promise to manage, but not to cure, Parkinson's disease, Parkinsonism and related movement disorders. I could never recommend a clinical trial or course of treament for anyone, but I am very excited that Obama could repeal the government ban on SCT research funding. . . I dream of a day when people monitor their dopamine vs. acetycholine levels and take injections as people with diabetes can do. Diabetes used to be hopeless but look how much better some people are doing now. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn