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I debated whether to add to this subject or not. My pwp now lives with me in
the US. He was dx in 1997 when only 47 years old. When I met him online and
learned he had PD, he could say the words but was in denial as to what this
really meant in his life. Over the years I knew him, I suggested a support
group where he lived in So. Australia. When he went to the one he found, all
were a lot older and further down the road of PD. Once here, I suggested we
go to the one near me. It is run by a nurse practitioner (with many letters
after her name) who assists the neuro surgeon she works with once he locates
the best possible settings for a patient's dbs surgery. John went to this
first support group, meeting several men who had had the surgery with good
results. Now that my pwp had the surgery this year, he feels he can help
others within the group who may have questions of what they may face in the
future. Yes, I know as does he that each case is different, but in helping
others, he repays the help I received from PIEN and others met through it,
for him. We both benefit-- not just him.

Audrey
Seattle, pwp John from Oz

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