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In a message dated 11/12/2008 2:00:33 A.M. Eastern Standard Time,  
[log in to unmask] writes:

The most  important thing a newly diagnosed Parkinson's patient can do is to 
find a  support group.  I know that it can be hard to see how PD affect those 
 
who suffer long term disease, but people in a support group generally know  
where the best movement disorder specialists practice.  It is the one  regret 
I have when I look back on my husband's PD journey (which lasted 28  years). 
We wasted years looking for the 'right' neurologist when that  fellow 
practiced right under our noses not more than 15 miles away.   My husband 
suffered unnecessarily because he was afraid to go to a support  group.



Been there have done that.  Have to agree, except I think a good  neuro. is 
first., I lost my husband  in April, after 22 years of  dealing with this 
disease.  I have advocated, spoken, been everywhere  trying to find a cure.  I run 
a support group, and they are wonderful, but  Brig would not go either for the 
first 7 years.  Just please take an active  part.
 

Gerry Haines  
Pennsylvania State Coordinator.
Parkinson's Action Network
"Do  something good for someone you least like today."
St. Anthony of  Padua

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