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I tried a local support group, they're nice people but 20-30 years my senior & we've nothing in common (I was a young-ish onset - 47), plus one member turned out to be one of my old teachers who did not have fond memories ! Quoting rayilynlee <[log in to unmask]>: > thanks Kathleen. I tried several support groups and did not care for them. > Same thing when I had cancer - it was very depressing!! > Ray > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > ----- Original Message ----- > From: "Kathleen Cochran" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, November 15, 2008 8:00 AM > Subject: Re: I have just been diagnosed with Parkinson's > > > >I believe support groups are not for everyone and can be counterproductive. > > A positive attitude is of paramount importance in living with this > > disease, > > and support groups can undermine that. It's next to impossible to look at > > someone whose condition is worse than yours and not imagine that this is > > your future. That is not only dispiriting, but also wrong. PD is > > notoriously > > variable in symptoms and progression from one person to the next. You > > can't > > predict based on someone else's experience what your course will be. > > > > That said, some people thrive on support groups. > > > > I also think those who love and care for PD patients may benefit from > > support groups at least as much as patients do. > > > > Kathleen > > > > 2008/11/14 Gerry Haines <[log in to unmask]> > > > >> > >> In a message dated 11/12/2008 2:00:33 A.M. Eastern Standard Time, > >> [log in to unmask] writes: > >> > >> The most important thing a newly diagnosed Parkinson's patient can do is > >> to > >> find a support group. I know that it can be hard to see how PD affect > >> those > >> > >> who suffer long term disease, but people in a support group generally > >> know > >> where the best movement disorder specialists practice. It is the one > >> regret > >> I have when I look back on my husband's PD journey (which lasted 28 > >> years). > >> We wasted years looking for the 'right' neurologist when that fellow > >> practiced right under our noses not more than 15 miles away. My husband > >> suffered unnecessarily because he was afraid to go to a support group. > >> > >> > >> > >> Been there have done that. Have to agree, except I think a good neuro. > >> is > >> first., I lost my husband in April, after 22 years of dealing with this > >> disease. I have advocated, spoken, been everywhere trying to find a > >> cure. > >> I run > >> a support group, and they are wonderful, but Brig would not go either > >> for > >> the > >> first 7 years. Just please take an active part. > >> > >> > >> Gerry Haines > >> Pennsylvania State Coordinator. > >> Parkinson's Action Network > >> "Do something good for someone you least like today." > >> St. Anthony of Padua > >> > >> **************Get the Moviefone Toolbar. Showtimes, theaters, movie news > >> & > >> more!( > >> > http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=htt > >> p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: mailto: > >> [log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------- This mail sent through http://www.ukonline.net ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn