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hi sandy, i agee with you concerning the risks. i had a very inexperiencd neurologist and medtronic rep programming . on my first anversary i was told i had to be on 6 volts and as a result my 15 month old kinetra battery was depleted and i needed a new one, and btw they though my leads were too deep below the midline and i need have a re-do. i became very depressed. it took me a year to find sierra farris up in kirkland, wa. she is my medical ANGEL. -charlene lustig pd since 1990, dbs 2005 --- Original Message ----- From: "Sandra Way" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, December 05, 2008 11:56 PM Subject: Re: DBS UPdate >>> It is great to hear how well Brian is going! > > However, I have to agree with Craig from Maui that it is a big risk.I had > my DBS 2 years ago and suffered a stroke which left me paralysed on the > left side. I still have not recovered use of my left hand though I can > now walk again. The team told me there was a 1 to 2 % risk of a bleed but > as the surgeon said "It's not much comfort if you are that 1 or 2%" The > electrode placement was also affected by the bleed so it is not helping > my Parkinson's. Before surgery I never thought of myself as disabled but > now I am. Sorry Nigel to give you a bad story but I don't think when > you're told the risks you fully appreciate them until you've had to live > through them. I lost my independence for a year and that really doesn't > help the depression from the PD or the stroke. > > Make sure you choose a good team if you do decide to go ahead. Brian is a > shining example of how good it can be when it succeeds. > > Best wishes to all > > Sandra Way > Sydney, Austtralia > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn