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I am afraid I am the laggard of the group and the spacing of my dosages has been all over the clock. I have been prescribed 25/100 Sinemet three times a day along with 75 mg Mirapex and 5 mg Selegilene. I also take Flomax CR (1x Day)and Novo oxybutnin (1x day). 1 mg Folic Acid, calcium 2x daily. i am very erratic in taking the meds, and try to keep to three times a day but no fixed times. And I usually forget them altogether one to three times a week. I am sorely tempted to give up the meds completely, or to phase them out. I think I have read that there are cases where the meds contribute to the symptoms rather than alleviate them. I also have osteoporosis for which I have just completed an 18-month program with Eli Lilly's new drug, Forteo wherein I injected myself every morning. This past week I took a bone-density scan and Wednesday I am hoping to get the results, expecting 20-25% increase in density. This may allow for spinal surgery. which I am not too crazy about. My worst symptoms are camptocormia which means I cannot straighten myself when standing or walking. I can lay down perfectly straight and semis-straight when sitting. But the camptocormia has brought on shortness of breath, especially if I walk without a walker. It has been suggested that my bent-over posture has been crushing my lungs and so I also now have a 'puffer' 3x a day. I am growing weary and am tempted to give up all the meds and see what happens. Before I do that I will enquire as to the consequences. Fr'instance: can the PD and accompanying symptoms get worse with no returning to the meds to regain the balance I have now? I will discuss this with my neuro at my next visit -- scheduled every 4-5 months. since 1998 the only deterioration I have experienced is the damned camptocormia, apparently a rare condition which my neuro (one of two movement disorder specialists in Montreal) has seen only in 3-4 others. He feels it may have been triggered by a fall I took a couple of years ago which crushed 1-2 vertebrae when I landed on my coccyx. Phew! Thank you for bearing with this. I have probably left out even more meds, like the anti-depression pills (150 mg) bupropion SR. Every once in a while I wonder whether I really have PD or whether it is something with similar symptoms. Anyway I think I have rambled on enough and will appreciate input from anyone in a similar situation. Murray Ray, I received the pins and they are already being displayed all over Montreal. Thanks! On 6-Jan-09, at 6:33 PM, rayilynlee wrote: > I recently got some carbo/levo from my neuro to try once more. When > I first tried it it helped but never again even tho I took it for a > year. He gave me 25/100 3 times a day and I've forgotten how you > space the dosages. Do you take it at night or just daytime? I've > forgotten. in 2003 I had DBS and tried Comtan and Stalevo > afterwards but it didn't help. > > > Ray ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn