 |
 |
On Mon, 12 Jan 2009 10:22:40 -0700, Ray asked: Don't we need to know what causes this(these) disease(s)? My fear is a "cure" will not fit all. or is it not necessary to know etiology of disease? Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation rbrown@xxxxxxxxx * * * * And my answer is YES! Absolutely we need to know the cause, which is akin to my #2 below: TOP 10 LIST FOR THE PARKINSON'S COMMUNITY From original text: Quote: 1. FIND OUT HOW MANY PEOPLE HAVE PD! I have volunteered with PAN for 8 years (Parkinson's Action Network), and each year at their forum we go through 2-3 days of "training" and research updates, then visit our legislators on Capitol Hill to tell our story. Every time somebody asks me, "How many people have Parkinson's in Tennessee?" And every time I have to answer, "er . . . um . . . I don't know." Enough said! 2. WE NEED A TEST FOR DIAGNOSING PARKINSON'S ! Not only are we confused as to how many have PD, but we aren't really sure if those diagnosed really have PD! - we're trying to cure a disease diagnosed purely by symptoms. And on top of that - our clinical trials are based on "observed symptoms." Who's to say that a number of people out there taking Sinemet for years were just shaking from anxiety on initial diagnosis and the rest of their symptoms are as a result of the meds. There's something wrong with this picture. :End quote And I should have made myself more clear - this is not necessarily the order of priority - I was just brainstorming. So Ray, let's make #3 Find the cause of PD - OK? And Thanks. I posted this in 3 forums and anyone attending a meeting with an org or a scientific meeting or whatever can take the "list" to let those working to find a cure know what we as grassroots community see as top priorities. Peggy ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn