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RE numbers: the number I always hear is a million in the USA. Does anyone know where this comes from and whether it is credible? Re diagnosis: I don't know if this article was posted on the listserv, so excuse me if it's already made the rounds.. One of the authors is my neuro. I donated blood for the study. :-) http://www.medscape.com/viewarticle/574010_4 Possibe items for the wish list: 1. How about promoting awareness and understanding of the disease and its impact? Most people think that just movement is affected. 2. Better understanding of how exercise and sensory stimulation influence the disease? 3. Better assistive devices? The classic cane is just not very helpful, IMHO. 4. A thorough investigation of what *really* happened with Amgen and GDNF! 2009/1/11 Peggy Willocks <[log in to unmask]> > I'm posting this in several forums and here for feedback. > > I love David Letterman's Top 10 list, which can be hilarious. But I want to > talk to you about a few serious topics relevant to Parkinson's disease. > Visit Faster Cures website and their Top 10 "wants" for this year > www.fastercures.org . Faster Cures was established by the Milkin > Foundation > after Mike Milkin survived a bout with cancer. Now the philanthropic > Milkins > are putting a bundle into helping all diseases find faster cures. And they > aren't alone. The Grove Foundation (Andy Grove - former CEO of Intel who > also has PD) is uncovering every shell they can too solve curing or at > least > better treatment of PD than a 40-year-old drug. And look at the Fox > Foundation; Mike's org has raised upwards of $132 million in helping find a > cure. > > Everybody wanted "change," and believe you me - it's coming! I feel for the > Obama administration.. One can only imagine a different political party > going into office after 8 years; there will be so many hands out asking for > help that some will have to go home totally empty. and it's going to be up > to us (grassroots) to get their attention. So this thread is to brainstorm > what our Top 10 list should be. > > TOP 10 LIST FOR THE PARKINSON'S COMMUNITY > > 1. FIND OUT HOW MANY PEOPLE HAVE PD! > I have volunteered with PAN for 8 years (Parkinson's Action Network), and > each year at teir forum we go through 2-3 days of "training" and research > updates, then visit our legislators on Capitol Hill too tell our story. > Every time somebody asks me, "How many people have Parkinson's in > Tennessee?" And every time I have to answer, "er . . . um . . . I don't > know." Enough said! > > 2. WE NEED A TEST FOR DIAGNOSING PARKINSON'S ! > Not only are we confused as to how many have PD, but we aren't really sure > if those diagnosed really have PD! - we're trying to cure a disease > diagnosed purely by symptoms. And on top of that - our clinical trials are > based on "observed symptoms." Who's to say that a number of people out > there > taking Sinemet for years were just shaking from anxiety on initial > diagnosis > and the rest of their symptoms are as a result of the meds. There's > something wrong with this picture. > > 3. WE NEED __________________? > aha! I'm turning it over to you for a few thoughts. > > Please join in this discussion > > Peg > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn