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My DBSs mainly stopped my tremors, but as far as I can tell never helped my poor balance, stiffness, micrographia or dystonia. My trouble speaking started after the DBSs so it is impossible for me to know whether that is PD or DBS related. Tremors drove me nuts. Now once in awhile there is slight tremor breakthrough, but it was definitely worth the DBSs. Since PD meds never helped me (except once) I stopped taking them. My neuro gave me the leva/carbo to see if that is still the case as since my fall last April I have gotten so much worse. I had a psychological trauma around Christmas as my "caregiver" threw out my mother's ashes. Any kind of physical or emotional injury makes me irreversibly worse. I'm having lots of company this month and Feb so I'm waiting to experiment again. Thanks, guys - all who responded - re dosage. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Rick McGirr" <[log in to unmask]> Sent: Wednesday, January 07, 2009 9:22 PM To: <[log in to unmask]> Subject: Re: question re dosage > I've been on the stuff since diagnosis in '01. I now take Sinemet CR > 50/200 > three times a day, first dose about 9:30, second at 4-ish, third at around > 9 > or 10. The third dose may seem late, but being a night owl, it works for > me, and seems to smooth the overnight stretch, which is the longest spent > without taking meds. > > About two months ago I also started taking Comtan 50 mg along with each > dose > of carb/levo. I was having problems with diskenesias and the Comtan seems > to have helped, I guess. The precise action and the best timing of these > drugs has always been elusive. I can be on the same sched on consecutive > days and get way different results. Of late I have been more mindful of > what I eat and when, after reading everyone's thoughts about the conflict > between protein and the meds. > > Ray, how do you rate your DBS now, 5 years after? Has its benefits > lessened > over time? Why did your neuro give you carb/levo? > > Hang in there, kid. > Rick > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of rayilynlee > Sent: Tuesday, January 06, 2009 6:34 PM > To: [log in to unmask] > Subject: question re dosage > > I recently got some carbo/levo from my neuro to try once more. When I > first > tried it it helped but never again even tho I took it for a year. He gave > me 25/100 3 times a day and I've forgotten how you space the dosages. Do > you take it at night or just daytime? I've forgotten. in 2003 I had DBS > and tried Comtan and Stalevo afterwards but it didn't help. > > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn