Welcome, John. Sorry you ended up here. I know exactly how you feel! I was also diagnosed at 50 or maybe 49--I am 51 now, and still mild. I read a book about young onset parkinsons...wish I could remember the name, it was written by someone who started this list. It was nice to see I wasn't the only one!
I am sure the more experienced 'parkies' can better address the med issue. I know the docs drag their feet about sinemet in someone our age. But the other drugs not so much. I don't think the PD drugs make the disease worse, so if they help your symptoms/help you to function, go for it. If the side effects are worse than the disease....then don't. I am on Azilect, myself and do think it helps my coordination. Not 100% but I don't think anything is. My doc says maybe it will even slow progression. Not likely, but one can hope. She also prescribed amantadine for my stiffness but I have not started it yet...
I am hearing over and over--exercise and good nutrition! Since the disease is oxidative damage, I am trying to eat alot of natural antioxidants. If it does not help my PD< should help something!
I find when ever I get down about the prospects, I see someone worse off than me (parapalegic, chronic migraines, whatever) and I think, maybe I am not so unlucky...we all have our crosses to bear, this just happens to be ours...
Good luck and welcome to the group.
Kristin
________________________________
From: John Bianchi <[log in to unmask]>
To: [log in to unmask]
Sent: Wednesday, January 7, 2009 1:03:23 PM
Subject: intro from listserv newbie with a general question
Hello all.
My name is John and I was recently diagnosed with onset PD at the age of 50..
My symptons are currently minor (slight arm tremor during night, limited motion in a few fingers on left hand, loss of left arm swing while walking).
I am coming out of the shock/denial stage and currently trying to educate myself on my new "life-partner".
I have read several books recommended by the doctors and looked at several websites (including viartis.net/parkinsons). Any general recommendations ?
My doctor would like me to start on a low-dose agonist (Mirapex) regime but after all I have read I am apprehensive about starting any drugs ( I am somewhat scared of the side-effects and Viartis's implications that some of these drugs may make things worse in the long run)
Am I overreacting ? Any tips on pitfalls to avoid along this route?
thank you all for your patience and consideration
Peace to you all.
John
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