Print

Print


Dear Murray and other bad-luck "parkies" like me with camptocormia,

How could this happen to such nice people like us. The day before yesterday I 
learned a stinky new word (starts with a "c") and I couldn't believe this was 
happening to me. Wasn't Parkinsons bad enough?  

I am only the second person my movement disorders specialist has seen with 
this condition and a roomful of neurological surgeons had never seen it 
before.  My neurologist is already talking DBS.  What are the other options 
that are less  invasive but that still work? I have an appointment with a 
physical therapist - does that work?  How do you deal with the excruciating 
back pain? How do you deal with the loss of a normal life - "shop 'til you drop" 
happens  in about 12 and a half minutes. My husband still thinks tnat's too 
long.  No more freedom to hop in the car and go where you please. Now I 
have a good view of the sidewalk while I fumble with a cane and a handbag 
and wait for some good-natured soul to drive me around.  I would like to stand 
up straight  and look at people's faces - is this possible?  Is there still life after 
camptocormia?  Laying on the couch all day watching CNN does not count.

Anxiously waiting for advice,  

Margaret

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn