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Nigel I'm sorry to hear about the mixed results you got with DBS. Just read about a guy in Washington state who had bad results. He even had to have redo because electrode was in the wrong place and a different programmer, but the end result was like a miracle. I had a redo of right side 2 months after first surgery. My DBS stopped my tremors and I am not doing so great, but take no PD meds. If you have the strength, I encourage you to pursue a solution. Its an ordeal, I know. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Nigel Harland" <[log in to unmask]> Sent: Monday, February 23, 2009 7:01 AM To: <[log in to unmask]> Subject: DBS PPN update. > Well here I am at home after my bi-lateral dbs/ppn surgery, and I have > to say so far it has been a mixed set iof results. > In my "off " state I am now able to walk albeit slowly ,without losing > balance or falling over(a big plus) However my L-dopa medication ( > Madopar) no longer has a beneficial effect, in fact it now has a negative > effect in that it seems to imobilise me to the extent of making it > impossible tto walk or even to get out of my chair. > I am due back at hospital on April 1st, but may have to go back sooner if > nothing improves.If anyone wants more details don't hesitate to ask. > > Nigel. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn