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i have joined this to learn all i can to help my husband, alan, who is  
63 and been diagnosed with pd for the last 15 years.  we live in  
dallas and have been seeing a neuroligist at ut southwestern.  he has  
not been to the doctor in over a year.  he feels he will just get more  
medication or tweaking of his current meds.  this is our 5th doctor  
over the past 15 years.

alan's sleep is interrupted with hallucinations occastionally.  wish  
those would go away.
i googled comtan and sinemet  which have these side affects.

his current regime is all medications.  comtan, carbidopa-levadopa,  
amantadine, plus he takes heart meds crestor, metropolol, plavix
he supplements with magnesium (constipation), vitamin e, aspirin.

he recently has fallen twice and i think it may be from the crestor,  
as he just started this 4 months ago, instead of lipitor.  i am trying  
to encourage him to be more wholistic with a statin.  anyone with any  
ideas, please pass on.

he said the other day he wished he could go to the doctor and get a  
cure.  wishful he knows.

dbs does not interest him.  i am massaging him and he does stretches.   
he is extrememly hunched over from back pain.  i wonder if that is  
from the drugs he is taking???
any suggestions are appreciated.

his voice is so soft, we are trying to find a portable microphone that  
could be used in social settings.  any suggestions would be  
appreciated.  he has tried Lee Silverman training.

alan has a great attitude mostly.  he doesn't like to rock the boat,  
but makes profound statements at the right time, that amaze me and  
teach me how to handle things differently.

i have heard alot about a neurologist,  dr. jankovich in houston, tx  
that i would like to take him too, but it is 4 hours away and  
expensive. (he is not a Medicare provider)  anyone seen this doctor?

we have not been impressed with our past neurologists as time goes on,  
because it is the same thing, more drugs, different combinations, more  
drugs.  the drug companies are making a killing.

we did attend a week long over night session this past summer here in  
dallas ($2750), with a fellow from australia, noel batten, claiming  
parkinson's is the biggest medical blunder, and positive results can  
happen with a week long visit.  it was a highly anticipated week , we  
learned alot about our own selves and strengthened our marriage.
chiropractic care, massage, mental soul searching of past traumas were  
most of the routine.
did we see physical improvement, yes, some, after the chiropractic  
treatments of this wonderful chiro doctor we found during this week.   
results were not long lasting..
alan went one time a week for 6 months, which ended in dec 2008, as  
driving was difficult for him to get there, and i have a job that kept  
me from taking him.

i am trying to help my husband live a quality life.  thank you for  
your suggestions.

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