I do not post on PIEN leaving it to my pwp partner who is now back in Australia on a visit. As he is not here, I would like to add some of the observations that I have learned since meeting him 10 years ago when he was first dx. There is no cure at this time for PD or any thing which is dx under the PD umbrella. As it differs in each pwp, it is impossible to state that what works for one works for all. In my Johns case, he had a dbs last year which helped most of his ongoing symptoms, but which also includes sinemet even though far less than he had been taking. It seems so important to find some one who is either familiar with what pd is-- or is a movement disorder neurologist or there is a near by Parkinson's disease association which knows who to see. Attitude is so important in helping as depression or thoughts of why me? I am lucky in this that John is someone who acts rather than thinks of himself as a victim. He sees his movement disorder neuro at the least every 6 months--more often if he feels any changes or return of his symptoms which would indicate resetting of the dbs stimulator. In his case, he had no other ongoing health issues so was a good dbs candidate. Balance as in too fast turning around remains the main daily issue. slow down is the advice he gets. My issue is what I need to do to keep some kind of order in our lives without taking away his sense of ability to make personal decisions that will benefit our lives rather than detract? Audrey Seattle he has not been to the doctor in over a year. he feels he will just get more medication or tweaking of his current meds. this is our 5th doctor over the past 15 years. alan's sleep is interrupted with hallucinations occastionally. wish those would go away. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn