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patti, unfortunately PD is a degenerative disease and all the doctor can do is to tweak dosages to improve movement. Turn to Allah (GOD) and seek spiritual help and encourage allen to remain positive. Cheers Haroon PwP 62 years of age, diagnosed 6 yeasr back On Wed, Feb 25, 2009 at 4:53 PM, PATTI ZAPF <[log in to unmask]> wrote: > i have joined this to learn all i can to help my husband, alan, who is 63 > and been diagnosed with pd for the last 15 years. we live in dallas and > have been seeing a neuroligist at ut southwestern. he has not been to the > doctor in over a year. he feels he will just get more medication or > tweaking of his current meds. this is our 5th doctor over the past 15 > years. > > alan's sleep is interrupted with hallucinations occastionally. wish those > would go away. > i googled comtan and sinemet which have these side affects. > > his current regime is all medications. comtan, carbidopa-levadopa, > amantadine, plus he takes heart meds crestor, metropolol, plavix > he supplements with magnesium (constipation), vitamin e, aspirin. > > he recently has fallen twice and i think it may be from the crestor, as he > just started this 4 months ago, instead of lipitor. i am trying to > encourage him to be more wholistic with a statin. anyone with any ideas, > please pass on. > > he said the other day he wished he could go to the doctor and get a cure. > wishful he knows. > > dbs does not interest him. i am massaging him and he does stretches. he > is extrememly hunched over from back pain. i wonder if that is from the > drugs he is taking??? > any suggestions are appreciated. > > his voice is so soft, we are trying to find a portable microphone that > could be used in social settings. any suggestions would be appreciated. he > has tried Lee Silverman training. > > alan has a great attitude mostly. he doesn't like to rock the boat, but > makes profound statements at the right time, that amaze me and teach me how > to handle things differently. > > i have heard alot about a neurologist, dr. jankovich in houston, tx that i > would like to take him too, but it is 4 hours away and expensive. (he is not > a Medicare provider) anyone seen this doctor? > > we have not been impressed with our past neurologists as time goes on, > because it is the same thing, more drugs, different combinations, more > drugs. the drug companies are making a killing. > > we did attend a week long over night session this past summer here in > dallas ($2750), with a fellow from australia, noel batten, claiming > parkinson's is the biggest medical blunder, and positive results can happen > with a week long visit. it was a highly anticipated week , we learned alot > about our own selves and strengthened our marriage. > chiropractic care, massage, mental soul searching of past traumas were most > of the routine. > did we see physical improvement, yes, some, after the chiropractic > treatments of this wonderful chiro doctor we found during this week. > results were not long lasting.. > alan went one time a week for 6 months, which ended in dec 2008, as driving > was difficult for him to get there, and i have a job that kept me from > taking him. > > i am trying to help my husband live a quality life. thank you for your > suggestions. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > -- Haroon Basheer www.parkinsons.org.pk ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn