Kathleen
I hope you helped set them straight or posted my emails if you don't want
to. However, the last time (yesterday) I saw a Prentice article he was more
honest. But no doubt the damage is already done. Also these
misrepresentations raise all kinds of suspicions which make evaluation of
the treatment problematic.
We know Turner's PD returned 5 years ago.
sources: Turner - 3-24-06- & 2-19-09 via phone
Levesque - journal article and email to me.
also he was on PD meds and DBS neurostimulator during treatment -
Levesque's Bentham article and email to me.
Phase II has been stalled for 5 years and I've never received answers from
Levesque as to why I could understand.
Levesque or someone paid $800 to publish the article although Linda with
good source believes the journal is reputable, the timing of the publication
is interesting.
Ray
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]
--------------------------------------------------
From: "Kathleen Cochran" <[log in to unmask]>
Sent: Sunday, February 22, 2009 5:02 AM
To: <[log in to unmask]>
Subject: Re: after 1 yr stem cell treatment
> If you click the link to this man's site, in the headline it says ADULT
> stem
> cells.
>
> I've been spending some time on Twitter and tumblr, and groups opposing
> ESC
> research are a presence there, carrying on about Dr. Levesque as if he
> were
> the second coming and equating ESC research with infanticide. It's true
> what
> you say, Ray; every time ESC research comes up for reconsideration there
> is
> a PR blitz asserting the success of adult stem cell therapies for
> Parkinson's patients.
>
> I find this limited, utilitarian view very strange. Even if adult stem
> cells
> were efficacious in treating PD, I'm sure we would still have much to
> learn
> from embryonic stem cells. Why throw those cells away rather than study
> them?
>
> As for Mr. Wolf, how remarkable that we haven't heard of him before.
>
> Kathleen
>
> 2009/2/21 rayilynlee <[log in to unmask]>
>
>> My condition after 1 year of stem cell treatment" - Story of Mr. Wolf, a
>> patient with Parkinson's disease
>> July 24, 2008
>> The facts about my therapy experiences.
>> 1st treatment
>> On July 26, 2007, I received an implantation of 10 million stem cell
>> units
>> at the XCell-Center in Cologne.
>>
>>
>> After this treatment, I slowly phased out the following medication over a
>> period of 4 weeks:
>>
>> Amantadine 200/1003 xdaily
>> Levocomp 100/503 xdaily
>> Cabaseril 1 mg2 xdaily
>> Levodopa/Carbidopa 200/50 Retard2 xdaily
>> Acilect 1 mg1 xdaily
>> Comtesse 2003 xdaily
>> Total: 14 tablets daily
>> Cost: 771.77 ? / month
>> 12 months = 9,261.24 ?
>>
>> Afterwards, I had no pain and had stopped taking any medication.
>> The symptoms typical of Parkinson's disease, which had been causing my
>> condition to decline unstoppably with all the attendant consequences, had
>> vanished.
>> No slight tremor.
>> No back pain.
>> The feeling of having painful, leaden legs disappeared.
>> No dyskinesia (powerful twitching) in my legs at night.
>> The feeling of dizziness when getting up and climbing stairs disappeared.
>> The urge to go to the toilet 3-4 x a night decreased to just once a night
>> or not at all.
>> It again became a pleasure to do one hour of sport every day:
>> cross-country
>> running (jogging) and walking (hiking), cycling, skiing, playing tennis,
>> and
>> most recently motorcycling.
>> Recently I have found that I am rolling my feet more and more to cushion
>> the impact when running.
>> Because I no longer have side-effects from the medication, I can now
>> easily
>> drive a car without feeling tired.
>> The same applies to my newly acquired motorbike.
>> I also no longer suffer from dizziness after car/motorbike trips, which
>> means I can now undertake longer journeys, also with other means of
>> transport.
>> Cleaning my teeth and buttoning my shirt is becoming easier all the time.
>> I can also say that fresh water - and not only this - again tastes fresh.
>> As a follow-up
>> i.e. after the 1st treatment on July 26, 2007, I went for tests at the
>> Neurological Clinic in Saarbrücken on January 28th, 2008. Please consult
>> the
>> report on my website
>>
>> http://www.wolf-sb.de/PersoenlicherBrief.html
>>
>> The test report does not indicate that the stem cell therapy had negative
>> results.
>>
>> Moreover, a psychological test revealed,
>>
>> Quote:...Compared to Parkinson patients, Mr. WOLF actually gave a
>> performance which could not be bettered.
>> 2nd treatment
>> Another 10 million stem cells on February 22, 2008
>> After the 2nd treatment on February 22, 2008, I went to Munich on March
>> 28,
>> 2008 for more tests; see the report on my website.
>> The neurological tests showed,
>>
>> quote:...The stem cell therapy had gratifying, very positive results, as
>> it
>> was followed by the relief of all symptoms.
>> I can now only confirm that Mr. Wolf's condition is exceptionally good,
>> with only very slight signs of the Parkinson symptoms of speech
>> inhibition
>> and freezing.
>> As regards the 2 symptoms I still have, I can only agree with the finding
>> in the last line and confirm it without reservation.
>> As regards the subject of research using adult stem cells, I have
>> corresponded in writing with people including reputable scientists from
>> organisations such as the FRAUNHOFER Institute.
>> As a rule, their answers are:
>> It has not been sufficiently tested.
>> Therapy with adult stem cells generates tumours.
>> Total rejection.
>> My answer, in part from experience:
>> How can it be tested if it is rejected out of hand?
>> Even doctors/professors don't know everything. Therapy with adult stem
>> cells does not generate tumours (see
>> /news/stem-cells-and-tumor-risk.aspx ).
>> Because they are sponsored by the pharmaceutical industry and haven't
>> undergone further training.
>> The fact is:
>> Sick people hope, o n l y the XCell-Center helps!
>> The leading doctors and the management responsible for stem cell therapy
>> in
>> the XCell Center do not guarantee the successful treatment of any
>> patient.
>> Even though I still have 2 mild symptoms, the elimination of all others
>> has
>> significantly improved my quality of life.
>> I personally am very satisfied with the treatment and the result.
>> I feel well.
>> Every day, I feel how I can think and act with greater freedom.
>> Every day, I am delighted by the progress I notice in myself.
>>
>> Johannes Wolf
>>
>> Rayilyn Brown
>> Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>> [log in to unmask]
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