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Ray, I'll have a go.... Amanda Quoting rayilynlee <[log in to unmask]>: > I tried to get Dennis Turner to join us. anyone who wants to try email me > for their emails > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > -------------------------------------------------- > From: <[log in to unmask]> > Sent: Friday, February 27, 2009 2:33 PM > To: <[log in to unmask]> > Subject: Re: Adult Stem Cell Treatment for Parkinson's > > > Any chance of getting Dr. Levesque on the list ? Both sides could > > benefit... > > > > Quoting rayilynlee <[log in to unmask]>: > > > >> Dr. Levesque > >> > >> Thank you again for taking the time to respond to my questions and > >> confirm > >> certain facts about this case. > >> > >> I assure you I never said you claimed a cure or successful treatment for > >> Dennis Turner, but other people have. You are to be commended for the > >> caveats and clarifications in some of the articles. currently on-line. > >> > >> I'm afraid most of the public won't read or understand the scientific > >> publication. > >> > >> Again, thank you, you've been most helpful. > >> > >> Rayilyn Brown > >> Director AZNPF > >> Arizona Chapter National Parkinson Foundation > >> [log in to unmask] > >> > >> > >> From: Michel Levesque, M.D. > >> Sent: Saturday, February 21, 2009 12:26 PM > >> To: rayilynlee > >> Cc: parkinsn ; [log in to unmask] ; [log in to unmask] ; > >> Dennis Turner > >> Subject: RE: Adult Stem Cell Treatment for Parkinson's > >> > >> > >> Dear Ms Lee, I will attempt to briefly answer your additional questions > >> below. > >> > >> > >> > >> How can the efficacy of the transplantation be accurately assessed if the > >> subject still takes PD meds and sometimes has a neurotransmitter turned > >> on? > >> Clinical evaluation is made while "off" medication and "on" medication. > >> This > >> is the standard evaluation for post transplantation patient. In Mr Turner > >> case, the evaluation was also performed while "off" his thalamic > >> stimulator. > >> Our goal in the future is to stop all medications completely after > >> transplantation which will allow cells to function better > >> > >> > >> > >> Even though as you explain Turner's DBS was not targeted for STN, > >> doesn't it > >> still qualify as a treatment? Mr. Turner was entered in the pilot Phase I > >> trial after our IRB committee would approve the transplantation only if > >> the > >> initial harvesting was performed during a neurosurgical procedure of > >> electrode implantation. The upcoming Phase II trial, patients with > >> previous > >> brain surgery or DBS will be excluded from entering the trial. > >> > >> > >> > >> DBS is now being targeted to areas of the brain to alleviate clinical > >> depression and epilepsy. Why does my DBS exclude me from Phase II and > >> Turner's was a part of his treatment package? See above. > >> > >> > >> > >> It seems to me that Turner's PD symptoms returned at least five years > >> ago. > >> His head was shaking in the 2004 video of his senate testimony. Why has > >> the > >> peer evaluation taken so long? Indeed his symptoms returned after 5 > >> years > >> post-op. I do not present this as a "cure" and never did. The > >> peer-reviewed > >> paper took years to be submitted because the data and all > >> microphotographs > >> belonged to the previous Celmed company, and they were reacquired by > >> NeuroGeneration in 2005. In addition, patent attorneys opposed the > >> publication until they completed their filing with the USPTO. > >> > >> > >> > >> The fact that his PD returned is never stated in the publicity > >> surrounding > >> Turner. What kind of difference would it make if it was? This clearly > >> stated in our scientific publication. > >> > >> > >> > >> > >> > >> Sincerely yours, > >> > >> M.Levesque, MD > >> > >> > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > > > > > > > > > > ---------------------------------------------- > > This mail sent through http://www.ukonline.net > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------- This mail sent through http://www.ukonline.net ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn