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Scott and Laureen: Several months after I had my DBSs in summer of 2003 I started having trouble speaking. My neuro says it is due to the DBS and it has gradually gotten worse. I feel like I am strangling when I speak. I'm sorry to hear that Laureen is having the same trouble. I too have a hard time getting around and have to force myself to go out now. I don't take any meds. I got worse after my fall last year. I'm finally trying to get back to the treadmill again because that helped me walk better before. I have to be so careful l don't fall again, my balance is awful. I will "walk" in my pool when it heats up and am thinking about getting a stationary bike as studies show that helps. Does Laureen have an exercise program? The DBS was worth it as the tremors drove me nuts, my ocular migraines are gone, and I am never depressed despite everything. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Scott E Antes" <[log in to unmask]> Sent: Sunday, May 03, 2009 3:19 PM To: <[log in to unmask]> Subject: DBS after Two Years > Hi All. Since we have so many members asking or reporting about DBS, I > wanted to comment. Two years ago this summer Laureen had her DBS surgery. > After inital problems (nightmares?) with programming, she was doing pretty > well. She was driving, shopping, visiting friends, etc. Not that she was > back to "normal," but she certainly was doing light years better than > before the surgery. Oh yes, she was using the Nupro patch after surgery, > too. > > Almost two years later, she still is virtually tremor and diskynesia free, > taking almost no meds. (Especially since Nupro was pulled from the > market.) *However*, her mobility is poor, and she sometimes (not always) > has difficulty speaking. She doesn't go to the store (even with me) very > often, because she has a hard time getting around. Even so, DBS has made > a significant and positive impact on her quality of life (and yes, on > mine). The Nupro seemed to make a postive difference, too, and we hope it > will be available again soon. Be well. Scott > > Scott E. Antes > Northern Arizona University > Department of Anthropology > PO Box 15200 > Flagstaff, AZ 86011 > _______________________________________ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn