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Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
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From: "rayilynlee" <[log in to unmask]>
Sent: Monday, May 11, 2009 9:55 PM
To: <[log in to unmask]>
Subject: Alzheimer's Project Part II/NIH Comments

> Dear Friends
>
> Won't you join me in supporting ESCR by responding to the NIH call for 
> comments?  For your convenience  I have prepared a sample letter you can 
> edit and adjust to personalize it, as PAN's suggested comments are kind of 
> long and confusing.
>
> Tonight I watched more of the Alzheimer's Project on HBO and am more 
> convinced than ever that we must prevent obstacles to research from being 
> placed in the way of scientists.
>
> The human toll of disease is just staggering and we should not wait to act 
> while we still can.
>
> Ray
>
> NIH comment site:    http://nihoerextra.nih.gov/stem_cells/add.htm
>
>
> Parkinson's disease exacts a devastating toll on people and their 
> families.    I know because I have been caregiver to my wife for well over 
> a decade/have suffered from Parkinson's for _____ years/am a friend of 
> someone who suffers from the disease. . Embryonic stem cell research 
> offers her/me/milliions hope for a better future and the final NIH 
> Guidelines should not create new bureaucratic obstacles that will slow the 
> pace of desperately needed progress.
>
> While it is commendable that the guidelines, Section 11 B,  would permit 
> the use of excess IVF embryos for research, federal funding of stem cell 
> lines derived from other sources such as somatic cell nuclear transfer 
> (SCNT) should be encouraged, not prohibited.
>
> The final guidelines should include a grandfather clause, enabling 
> scientists to build on progress that has already been made and allowing 
> federal funds for research using all stem cell lines created by following 
> ethical practices at the time they were derived.
>
> Please don't compromise my wife's/our/my health by restricting scientists. 
> We/she/I deserves/need the best treatment science can provide.
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
>
>
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