 |
 |
Murray I think it is a good idea that you keep us informed and reminded of your progress. Because camptocormia is rare I might just miss it if I came across information that might be useful.. I'll be on the lookout. It is quite true that because we have PD we can't think we won't get something else too Diane who supplies me with info has cancer as well as PD. I'm alone too and wonder how long I'll be able to be self-sufficient. I am sure I am not the only person on this List who holds you in his or her thoughts.. Wishing you all the best, Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Murray Kastner" <[log in to unmask]> Sent: Wednesday, May 20, 2009 1:31 AM To: <[log in to unmask]> Subject: Camptocormia -- again > I realize that camptocormia* is a very rare condition and most on the > list know not of it. But I have become quite debilitated by it. Being > bent over at the trunk(waist)has had the effect of crunching my lungs > making it difficult to breathe ergo exercise becomes more of a pain than > a help. > > Like someone else here said, "As though Parkinson's was not enough, now > we have to deal with this complication. My neuro is the chief at one of > Montreal's largest hospitals (JGH) and only has seen three other cases. > This means that no researcher is likely to follow through and find an > avenue that might give me/me some relief and a light at the end of the > tunnel. > > I live alone and am beginning to wonder when my freedom -- rather > restricted now but still... -- will be taken away and I will assisted > care. Right now it takes me over an hour to dress meself. Bummer. > > Please excuse this note which has a small constituency but I intend to > post once every little while, perhaps monthly, to see if anyone has found > anything that helps alleviate this. I am told that DBS is useless as are > other PD solutions. > > To end this on an upbeat note, we in Montreal are glorying in the warm > spring and lots of sunshine as well as ever longer says. Makes a > difference. Nobody appreciate the new foliage and verdant flora and fauna > than a Montrealer after our harsh winters. > > Enjoy the Spring and Summer, friends because winter follows! (I had a > friend from a warm climate who claimed that the four seasons in Montreal > were, "Almost Winter, Winter, Still Winter and Construction! The latter > refers to the fact that road repair must be done in the months without > snow and ice and inclement weather. > > Murray, who can be found pushing a walker through Westmount Park in > another few hours. > > *Camptocormia [from the Greek words; kamptos (to bend) and kormos (trunk) > is characterized by an abnormal posture of the trunk; the condition > involves forced thoracic-lumbar flexion that increases during walking > and/or standing and disappears in the recumbent position (i.e. lying in > bed) > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn