Eloquent statement. Thanks for sharing! We love and need our
Canadian neighbors.
Mary Remley
Ohio
----- Original Message -----
From: "Cees Huisman" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 18, 2009 11:14 AM
Subject: Re: 9 days to go -- Write a letter to the NIH!
> Hello all: OK, we we wrote the NIH as well. This is what we said:
>
> "Dear American Friends: I have Parkinsons Disease, the symptoms are
> with me every day. I am still working as a college teacher, but It has
> made me a less productive member of society. This process will
> continue until I become disabled. Of course I look forward to the day
> when a cure or a rehabilitation method is found. If not for me, then
> perhaps for the increasing number of Americans, Canadians and people
> in all countries who are yet to be afflicted with this illness. We are
> Canadians and don't mean to interfere in USA decisions, but the
> scientific work is so international that we wanted to provide some
> feedback. Just for the record, we are Christians who support embryonic
> stem cell research as a way to eventually alleviate untold suffering.
> Each PWP has family and caregivers who are also profoundly affected.
> Thank you for the opportunity to share our opinions. Casey and Jan
> Huisman".
>
>
> On 5/17/09, rayilynlee <[log in to unmask]> wrote:
>> Rayilyn Brown
>> Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>> [log in to unmask]
>>
>>
>> From: Diane Wyshak
>> Sent: Sunday, May 17, 2009 10:17 AM
>> To: idelle ; ray
>> Subject: Fw: Sunday, May 17, 2009 -- Write a letter to the NIH!
>>
>>
>>
>> ----- Original Message -----
>> From: Don Reed
>> To: Don Reed
>> Sent: Sunday, May 17, 2009 12:55 PM
>> Subject: Sunday, May 17, 2009 -- Write a letter to the NIH!
>>
>>
>> 1 PAGE, 1 PARAGRAPH, 9 DAYS: to Speak Up for Stem Cells…
>>
>>
>>
>> Dear Stem Cell Research Supporter:
>>
>>
>>
>> What if you could shape the guidelines allowing scientists to get
>> money for stem cell research? You can… if you act now. The next 9 days
>> are
>> the last of the public comment period for the new stem cell research
>> funding
>> guidelines. Read this one page, write and send one short paragraph—maybe
>> tell a friend or two—and do it now.
>>
>>
>>
>> Click on (http://nihoerextra.nih.gov/stem_cells/add.htm) and send a
>> message to the National Institutes of Health, the folks who make money
>> decisions for science. The note can be as long as you want it, or as
>> simple
>> as this sentence:
>>
>>
>>
>> “I support the position of the California Institute for
>> Regenerative
>> Medicine (CIRM) to improve the new federal stem cell research funding
>> guidelines.”
>>
>>
>>
>> It’s easy enough, that’s for sure—but why should you bother?
>>
>>
>>
>> The new guidelines (http://stemcells.nih.gov/policy/2009draft.htm)
>> have problems. If they are not fixed, as many as 90% of the currently
>> existing stem cell lines—ones scientists are using right now—could become
>> ineligible for federal funding. One change required is simple, and
>> urgent: a
>> “grandfather clause” so that stem cell lines developed during the Bush
>> Administration may not be disqualified on a minor technicality.
>>
>>
>>
>> Want more information? Three websites: For an expert analysis, read
>> the 11-page position paper developed by the California stem cell program,
>> the world’s leader: CIRM Comments on Draft NIH Guidelines for Human Stem
>> Cell Research 5/15/09 (REPLACING 5/12/09 version). Or, visit the website
>> of
>> the Coalition for the Advancement for Medical Research
>> www.camradvocacy.org,
>> or the Juvenile Diabetes Research Fund, www.jdrf.org, for clear “people
>> talk” explanations.
>>
>>
>>
>> If you prefer to send a hard-copy letter, send it to: NIH Stem Cell
>> Guidelines, MSC 7997, 9000 Rockville Pike, Bethesda , Maryland ,
>> 20892-7997
>>
>>
>>
>> Or use the comment box:
>> (http://nihoerextra.nih.gov/stem_cells/add.htm). It’s easy, and it
>> matters.
>> Either way is fine. But do it now, before the May 26th deadline passes.
>>
>>
>>
>> It’s time. Haven’t we had enough political delays? We all know
>> someone
>> who suffers an incurable disease or disability, which stem cell research
>> might alleviate, or heal. For me, that person is my paralyzed son, Roman,
>> and also my sister Barbara, who has cancer.
>>
>>
>>
>> So I ask you. Write your letter. Be among the overworked few who
>> change the world.
>>
>>
>>
>> Thanks,
>>
>>
>>
>> Don C. Reed, www.stemcellbattles.com
>>
>>
>>
>>
>> Don C. Reed
>> Sponsor, Roman Reed Spinal Cord Injury Research Act
>> Founder and Co-Chair, Californians for Cures
>>
>> Don Reed is also Vice President of Public Policy for Americans for
>> Cures Foundation; opinions voiced here as an individual may or may not
>> reflect those of the Foundation.
>>
>>
>>
>>
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>>
>
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