Please add my name to the list. I will encourage friends, family and
colleagues to add their comments to the NIH comments website.
The following is the text of my comment:
Dear sirs:
I have Parkinson's disease, the symptoms are with me every day.
I am a board certified Ophthalmologist who is no longer able to make my
healing expertise available to the public. I have dedicated my life to the
medical and surgical treatment of blinding disorders. Unfortunately, my
Parkinson's disease has robbed me of my hard won surgical skills and
experience. The disease will surely continue to worsen to the point where I
become disabled and a burden upon society as well as my family.
Of course I look forward to the day when a cure or a rehabilitation method
is found. If not for me, then perhaps for the increasing number of
Americans who are yet to be afflicted with this illness.
I support the position of the California Institute for Regenerative Medicine
(CIRM) to improve the new federal stem cell research funding guidelines.
Those guidelines are summarized as follows:
1. Recognize hESC lines derived in accordance with core principles for
ethical
responsibility. These core principles include:
. Requiring rigorous independent oversight.
. Ensuring voluntary and informed donor consent.
. Requiring no undue inducements.
2. Avoid disqualifying ethically responsible hESC lines or research
projects through
the retroactive application of detailed technical requirements.
3. Verification of adherence to regulations and guidelines requiring
ethically
responsible donation which can be established by:
. For hESC lines derived in the U.S., approval by an Institutional
Review
Board (IRB).
. For hESC lines derived outside the U.S., verification by an IRB that
procurement was consistent with the core principles of ethical
responsibility.
4. Explicitly permit the continued use of the established Pre-2001 hESC
lines that
meet Common Rule requirements on donor consent.
5. Allow the use of hESC lines derived from eligible blastocysts already
deposited in
tissue banks prior to the publication of the NIH guidelines provided there
was
IRB approval and oversight.
6. Permit the use of hESC lines derived through parthenogenesis provided
they meet
core standards for ethical responsibility.
Restrictions on this type of research funding will only delay the cure not
only of Parkinson's disease, also for diabetes, Alzheimer's, spinal cord
injuries and other dreaded medical conditions.
We owe it to the people of this country (and the world) to make every effort
to find a cure for these diseases; to do otherwise would be unconscionable.
Sincerely,
Howard M. Silverstein, MD, FACS
Boca Raton, Florida
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of rayilynlee
Sent: Friday, May 22, 2009 3:22 PM
To: [log in to unmask]
Subject: Fw: The Parkinson's List is now 51!!
50 & 51 thanks to Deb Stoltenberg
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]
>>> >>>>> the NIH guidelines comment site
>>>>>>>
>>>>>>> http://nihoerextra.nih.gov/stem_cells/add.htm
>>>>>>>
>>>>>>> >>>> --------------------------------------------------
>>>>>>>
>>>>>>> 1. Linda Herman (New York)
>>>>>>> 2. Rayilyn Brown, like Suzanne emailed relatives and friends +
>>>>>>> 2
>>>>>>> (Surprise AZ)
>>>>>>> 3. George Ferris (Canada)
>>>>>>> 4. Rick McGirr
>>>>>>> 5. John Yochim
>>>>>>> 6. Manuel Arellano (Wilmington CA)
>>>>>>> 7, Alan Zapf (Dallas Texas)
>>>>>>> 8. Patti Zapf (Dallas Texas)
>>>>>>> 9. Wilson DeCamp
>>>>>>> 10. George Bousilman
>>>>>>> 11. Suzanne Evans sent to 30 with 2 for sures
>>>>>>> 12. Shan + friends in Singapore
>>>>>>> 13. Janet Vernon (Green Valley AZ)
>>>>>>> 14. Dolores Gross
>>>>>>> 15. Carole Hercun (Connecticut)
>>>>>>> 16. John Testa
>>>>>>> 17. Paul H. Lauer
>>>>>>> 18. Ned Gardner (Minnesota)
>>>>>>> 19. Cees Huisman (Canada)
>>>>>>> 20. Pam Robillard
>>>>>>> 21. Meg Duggan + 800 emails (Missouri)
>>>>>>> 22. her sister + 300 emails (Missouri)
>>>>>>> 23.&24. their parents (Missouri)
>>>>>>> 25. Bernard Barber (Phoenix, AZ)
>>>>>>> 26. John Emrys (Toronto)
>>>>>>> 27. Amanda Phillips (UK)
>>>>>>> 28. Ellen Luhman
>>>>>>> 29.&30. John & Sue
>>>>>>> 31. Trauti Boyd for her husband Ray Boyd (VIrginia)
>>>>>> 32. Susan Wilson for Iven
>>>>>> 33. Ahsar Butt (Toronto Canada)
>>>>>> 34. Debra Stoltenberg (Washington state)
>>>>> 35. Stuart Stoltenberg (Washington state)
>>>>>> 36. Jerry E. Remley
>>>>> 37. Mary Remley
>>>>> 38. Larry Remley
>>>>> 39. Maggie Bauer
>>>>>> 40. Nina Brown + 8 for sures from 110 scientists and 248 others
>>>>>> (Texas)
>>>>>> 41. Maryse Schild (France)>
>>>>> 42. Dr. Raj Rajaraman
>>>>> 43. Nic Marais (South Africa)
>>> 44. Murray Kastner (Westmount, Quebec Canada)
>> 45. Roberta Innarella
>> 46. Hugh Jefferson (Dallas, Texas)
>> 47. Kathleen Cochran + friends & relatives (New York)
>> 48. Alex Cooray (Toronto, Canada)
> 49. Sherry Wilsey +friends (Ray's cousin from Oregon)
50. Denver Richardson
51. Joan Husinga
>>>>>>
>>>>>
>>>
>>>> are all folks who have submitted comments to the NIH re new stem cell
>>>>>>> guidelines.
>>>>>>> Won't you add your name to the "list" or if you wish to remain
>>>>>>> anonymous just let me know so I can come up with a count. Thanks.
>>>>>>>
>>>>>>> Add your name if I've left anyone out and send the new list to PIEN.
>>>>>>>
>>>>>>>
>>>>>>> To sign-off Parkinsn send a message to:
>>>>>>>
>>>>>>>> mailto:[log in to unmask]
>>>>>>>>> In the body of the message put: signoff parkinsn
>>>>>>>>>
>>>>>>>>
>>>>>>>>
----------------------------------------------------------------------
>>>>>>>> To sign-off Parkinsn send a message to:
>>>>>>>> mailto:[log in to unmask]
>>>>>>>> In the body of the message put: signoff parkinsn
>>>>>>>>
>>>>>>>
>>>>>>>
----------------------------------------------------------------------
>>>>>>> To sign-off Parkinsn send a message to:
>>>>>>> mailto:[log in to unmask]
>>>>>>> In the body of the message put: signoff parkinsn
>>>>>>>
>>>>>>
>>>>>>
----------------------------------------------------------------------
>>>>>> To sign-off Parkinsn send a message to:
>>>>>> mailto:[log in to unmask]
>>>>>> In the body of the message put: signoff parkinsn
>>>>>>
>>>>>
>>>>> ----------------------------------------------------------------------
>>>>> To sign-off Parkinsn send a message to: mailto:
>>>>> [log in to unmask]
>>>>> In the body of the message put: signoff parkinsn
>>>>>
>>>>
>>>> ----------------------------------------------------------------------
>>>> To sign-off Parkinsn send a message to:
>>>> mailto:[log in to unmask]
>>>> In the body of the message put: signoff parkinsn
>>>
>>> ----------------------------------------------------------------------
>>> To sign-off Parkinsn send a message to:
>>> mailto:[log in to unmask]
>>> In the body of the message put: signoff parkinsn
>>
>> ----------------------------------------------------------------------
>> To sign-off Parkinsn send a message to:
>> mailto:[log in to unmask]
>> In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
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To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
