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Meg please keep us updated on your sis' condition. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: <[log in to unmask]> Sent: Tuesday, June 23, 2009 3:03 AM To: <[log in to unmask]> Subject: Re: Going Off Meds Question > Meg, > I did not go off meds entirely (taking sinemet still) but about 10 years > ago I was taking mirapex and eldepryl with Sinemet and when I did end the > mirapex and eldepryl I had marked improvement in symptoms... which has > remained.?? Apparently that combo of meds, for me, increased edema in > legs, difficulty walking as well as sleep deprevation as well as some > increase in tremor. > > Rita > > > -----Original Message----- > From: Duggan, Meg <[log in to unmask]> > To: [log in to unmask] > Sent: Mon, Jun 22, 2009 3:35 pm > Subject: Going Off Meds Question > > > > HI All - My sister was dxd with PD about 15 years ago when she was 38. > She has been taking mirapex, requip and eldepryl is relatively small > doses since then. She has a fairly marked tremor mostly on one side, and > recently began experiencing seriously dry eyes, major back pain, and > pain in her legs, making it difficult to navigate stairs and things. 7 > days ago, she ran out of all her PD meds, and just stopped taking them > (yikes.) Since then, she is feeling just amazingly good. All pain has > disappeared, her tremor is noticeably calmed, she is sleeping all night, > no issues with stairs etc... Have any of you ever heard of such a > thing? We are of course currently wondering if she has been > mis-diagnosed, those she sees a movement disorder specialist, and as > someone who works in the field, she certainly seems to have every > outward sign of PD. Any thoughts? Thanks, Meg > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn