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Hi Meg.  Actually, yes.  A friend of hours was in pretty bad shape, PD-wise.  He concluded on his own that the battery of meds he was taking made life worse than the illness.  He stopped taking everything.  Amazingly, within a very short time (I forget exactly how long) he was looking fantastic!  I mean, he went from looking like a wreck  one time we saw him to looking absolutely normal the next, and the next.  The doctor's answer to this was simply that he must have been misdiagnosed in the first place.  S.A.

Scott E. Antes
Northern Arizona University
Department of Anthropology
PO Box 15200
Flagstaff, AZ 86011
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From: Parkinson's Information Exchange Network [[log in to unmask]] On Behalf Of Duggan, Meg [[log in to unmask]]
Sent: Monday, June 22, 2009 1:35 PM
To: [log in to unmask]
Subject: Going Off Meds Question

HI All - My sister was dxd with PD about 15 years ago when she was 38.
She has been taking mirapex, requip and eldepryl is relatively small
doses since then. She has a fairly marked tremor mostly on one side, and
recently began experiencing seriously dry eyes, major back pain, and
pain in her legs, making it difficult to navigate stairs and things.  7
days ago, she ran out of all her PD meds, and just stopped taking them
(yikes.) Since then, she is feeling just amazingly good.  All pain has
disappeared, her tremor is noticeably calmed, she is sleeping all night,
no issues with stairs etc...  Have any of you ever heard of such a
thing?  We are of course currently wondering if she has been
mis-diagnosed, those she sees a movement disorder specialist, and as
someone who works in the field, she certainly seems to have every
outward sign of PD. Any thoughts? Thanks, Meg


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