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Dear Ray and everyone

Thanks for all the wonderful information that you have provided through your parkinson's network. 

I'd like to share my experience with you and appreciate if you can give your comments. Two weeks ago, I discovered that one of my Parkinson's patients had undergone a "stem cell treatment" at Kuala Lumpur. This patient's daughter heard about the "stem cell centre" from her friends. The patient spent RM53000 (which is a huge sum of money) for a course of "stem cell" injections (administered into the shoulder muscles).

I explained to the patient that currently stem cell treatment for Parkinson's has not been shown to be consistently beneficial for parkinson's patients. I also mentioned to her the guideline which was issued by the International Society of Stem Cell Research in 2008, which aimed to educate the public on the possibility of unproven stem cell treatment. 

Recently, another stem cell company approached me and claimed that they had successful stem cell treatment for parkinson's - direct injection of stem cells into the brain.

In my country, people are so gullible and accept "treatments" which may be unproven, without consulting the relevant specialists? Does this happen in the US? What has the US government done to prevent this problem?

I am considering bringing up this issue in the local newspaper to alert the general public about such unproven treatment. Otherwise, more parkinson's patients will be victimized. 

I'd appreciate your advice.

Dr Chew Nee Kong, Kuala Lumpur.     

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