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Dear Mary Ann

Half of what I have learned about Parkinson's is from medical literature. The other half is from Parkinson's patients. 

This is why I really appreciate this kind of information network that you have. It is a pity that almost all Parkinson's patients in my country (even in the whole Asian region) do not have access to such information network.

I will continue to read the articles / comments from your network - I believe the best approach to management of Parkinson's is a "two-way-learning" process (doctors and patients learn from each other).

Dr Chew 

> Date: Thu, 9 Jul 2009 07:43:12 -0400
> From: [log in to unmask]
> Subject: Re: Young-Onset PD more common now
> To: [log in to unmask]
> 
> Thank you for you comments, Dr. Chew.  I appreciate the fact that you 
> continue to strive to learn more about YOPD.
> 
> The people who subscribe to this list, as well as to the CARE list, have 
> developed a considerable understanding about PD simply because we deal with 
> it 24/7.  Although the information is anecdotal, it has proven to be the 
> salvation of those who strive to deal with Parkinson's Disease.  I guess we 
> all get frustrated when we bring the information we have gathered to our 
> neurologists and are dismissed because we can't prove our findings.
> 
> I am very grateful that you are interested in hearing from us.
> ----------
> God bless
> Mary Ann (CG Jamie 68/28 with PD, died 11/20/07)
> www.bentwillowfarm.org 
> 
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