 |
 |
Vision problem suggestion:? Consider a pair of prescription glasses (any old pair) to wear while attempting to do any of the activities listed below (or reading!) to perhaps imitate our problems with focussing/spatial issues in your "demonstration area".?? Sounds like a great project Meg. Rita Weeks -----Original Message----- From: Duggan, Meg <[log in to unmask]> To: [log in to unmask] Sent: Tue, Aug 18, 2009 1:54 am Subject: Re: A more suitable name for PD. And an idea you can help with!! Here in KS, we are almost done with something we are calling the "one in = a million challenge" tag line: For more than a million Americans with = PD, simple daily tasks can be major obstacles. What would it be like if = you were in their shoes? Take this simple challenge and find out. (early = thoughts!) =20 So, we are still in development, but have a velcro walk - as it sounds, = long velcro carpet with velcro shoes to simulate feet stuck to the = floor. We have a bunch of very cool cognition tests, which we have = people do then we distract them or make them much more dificult to = simulate loss of executive function - just trying to show how much = harder it is to walk through the world with PD. Doing some adl stuff - = get coupons, get money, sign a check, timed and with added issues like a = pen that vibrates and super small lines to write in. Button, buckle, = lace, zip - all of it just a bit harder, we've had some gloves made for = people to put on for those tasks. Anyway, you probably get the idea. = We are going to travel with this - to places that don't usually care = about PD - like outdoor music fests and places where the young and = partyish hang out - hoping to give them an experience that they will = remember and bring them aboard to our cause. Its fun and quite a moving = experience - feedback is all good so far. =20 So - all this is to say that I am thinking the Tshirt, super duper pain = in my brain etc.. might really be a fabulous and fun kind of thing. I'm = sure if you did it in some very cool and graphic way, you could get = young people asking other young people ( substitute trendy, engaged, = interested, philanthropic, anyone with time. money, energy and passion = for young) asking about the shirt and what it means. =20 I'm loving the super duper pain in my brain vibe... =20 I'd also love ideas. We are trying to invent the simulations, trial and = error so far, and would love ideas. We have some cash to devote to = this, and really want to make it a very professional, profoundly moving = experience. Thoughts anyone??? =20 Love you guys one and all! Meg ________________________________ From: Parkinson's Information Exchange Network on behalf of Kathleen = Cochran Sent: Mon 8/17/2009 7:55 AM To: [log in to unmask] Subject: Re: A more suitable name for PD. I see T shirts! Kathleen 2009/8/17 Moneesha Sharma <[log in to unmask]> > Love this! > Moneesha > > > > 2009/8/17 MyFirstname Mylastname <[log in to unmask]> > > > I totally agree............let's not lose sight of what needs to be = done > > here......a cure and not a new name. > > It's difficult enough raising funds for research for a disease we = can > > pronounce...........Try raising awareness for the > > > > > = SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I'veBeenHi= tByaTruckThisDiseaseReallySucks > > Research Foundation. > > > > = ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: = mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn