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Sami guilty as charged!! I just think PD is an ornery, wicked disease, not the worst maybe, but bad enough. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Sami" <[log in to unmask]> Sent: Wednesday, August 19, 2009 1:47 AM To: <[log in to unmask]> Subject: Re: Re another simulation > Good grief, Ray. You really do have a little ornery streak hiding inside, > don't you??? LOLOL > > Sami > > -------Original Message------- > > From: rayilynlee > Date: 8/18/2009 11:03:24 PM > To: [log in to unmask] > Subject: Re another simulation > > tie their ankles together and tell them to walk. this would be good, I > think, as they would be forced to take short shuffling steps and would > trip > themselves. one hand tied behind back would be a nice touch. > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > -------------------------------------------------- > From: "Duggan, Meg" <[log in to unmask]> > Sent: Monday, August 17, 2009 11:54 PM > To: <[log in to unmask]> > Subject: Re: A more suitable name for PD. And an idea you can help with!! > >> Here in KS, we are almost done with something we are calling the "one in >> a >> million challenge" tag line: For more than a million Americans with PD, >> simple daily tasks can be major obstacles. What would it be like if you >> were in their shoes? Take this simple challenge and find out. (early >> thoughts!) >> >> So, we are still in development, but have a velcro walk - as it sounds, >> long velcro carpet with velcro shoes to simulate feet stuck to the floor. >> We have a bunch of very cool cognition tests, which we have people do >> then >> we distract them or make them much more dificult to simulate loss of >> executive function - just trying to show how much harder it is to walk >> through the world with PD. Doing some adl stuff - get coupons, get >> money, >> sign a check, timed and with added issues like a pen that vibrates and >> super small lines to write in. Button, buckle, lace, zip - all of it >> just >> a bit harder, we've had some gloves made for people to put on for those >> tasks. Anyway, you probably get the idea. We are going to travel with >> this - to places that don't usually care about PD - like outdoor music >> fests and places where the young and partyish hang out - hoping to give >> them an experience that they will remember and bring them aboard to our >> cause. Its fun and quite a moving experience - feedback is all good so >> far. >> >> So - all this is to say that I am thinking the Tshirt, super duper pain >> in >> my brain etc.. might really be a fabulous and fun kind of thing. I'm >> sure >> if you did it in some very cool and graphic way, you could get young >> people asking other young people ( substitute trendy, engaged, >> interested, >> philanthropic, anyone with time. money, energy and passion for young) >> asking about the shirt and what it means. >> >> I'm loving the super duper pain in my brain vibe... >> >> I'd also love ideas. We are trying to invent the simulations, trial and >> error so far, and would love ideas. We have some cash to devote to this, >> and really want to make it a very professional, profoundly moving >> experience. Thoughts anyone??? >> >> Love you guys one and all! Meg >> >> ________________________________ >> >> From: Parkinson's Information Exchange Network on behalf of Kathleen >> Cochran >> Sent: Mon 8/17/2009 7:55 AM >> To: [log in to unmask] >> Subject: Re: A more suitable name for PD. >> >> >> >> I see T shirts! >> >> Kathleen >> >> >> >> 2009/8/17 Moneesha Sharma <[log in to unmask]> >> >>> Love this! >>> Moneesha >>> >>> >>> >>> 2009/8/17 MyFirstname Mylastname <[log in to unmask]> >>> >>> > I totally agree............let's not lose sight of what needs to be >>> > done >>> > here......a cure and not a new name. >>> > It's difficult enough raising funds for research for a disease we can >>> > pronounce...........Try raising awareness for the >>> > >>> > >>> SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I > veBeenHitByaTruckThisDiseaseReallySucks >>> > Research Foundation. >>> > >>> > ---------------------------------------------------------------------- >>> > To sign-off Parkinsn send a message to: mailto: >>> > [log in to unmask] >>> > In the body of the message put: signoff parkinsn >>> > >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto: >>> [log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ____________________________________________________________ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.392 / Virus Database: 270.13.61/2312 - Release Date: 08/18/09 > 18:05:00 > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn