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Jim, I would like you to re-word the second paragraph of this message you sent around. I think "we" are able to influence practices by becoming aware and knowledgeable, by trying out methods, and by supporting each other in the process. The names of PD will change when diagnoses are made appropriately based on specific symptoms, starting with the known genetic conditions. It will take time, granted, but it will happen. Meanwhile, "we" have to be exact ourselves and use the appropriate terms when they are created. One of the significant group of people to keep eyes on and educate is translators. When they are educated, life in the smaller individual countries will be a bit more advanced. When you see errors please make others aware, nicely. Ansa Ojanlatva, PhD, CHES (ret.) Docent, Health and Sexuality Education Authorized Sexuality Educator and Sexual Health Promotor (NACS), Authorized in Sexual Science (NACS) Sanitas 3rd floor Lemminkäisenkatu 1 20014 University of Turku, Finland mobile +358-400-823 816 tel +358-2-333 8515 fax +358-2-333 8439 Please use the mobile phone number for calling. ----- Original Message ----- From: Jim Slattery <[log in to unmask]> Date: Thursday, August 20, 2009 10:08 am Subject: Re: A more suitable name for PD. To: [log in to unmask] > Dear Moneesha, > > The idea for changing the name of PD came about at a round-table > conference as > to what ways we could promote awareness of PD, and at the same time > raise the > awareness of doctors and para-medical people (nurses, physios, etc) of > the > practicalities of dealing with PD. > > We, and by "we " I mean the ordinary people in the equation, have > little or no > chance of influencing the search for either a cure, or a preventative, > for PD; > neither do we have any chance of coming up with a more efficient medication. > > My GP told me that he had had approximately one hour of lectures on > PD, as part > of a total of six hours for neuro-degenerative disorders, in the whole > of his > internship. My niece, during her nursing training, in the neurology > part of her > course, was learning from text-books that were six years out of date. > > WE have to try and get the information on PD updated, and we have to > get it > recognised as a disease of the Central Nervous System (CNS), by > whatever name we > call it. We have to try and have the information readily available for > making an > informed diagnosis. And we have to shorten the time taken for positive > > diagsosis. > > I was watching TV during my lunch-break, and the host of a program was > > interwiewing a young woman. She said that she began to have symptons > of PD at > the age of 23, and that she was finally diagnosed at the age of 27. > She said > that she had had a terrible tiime getting a positive diagnosis, as the > doctors > to whom she went did not believe in the range of systems she > presented, and were > of a common mind-set that her symptoms were psychological, of unknown > cause. > > In the mind of the general public, PD is seen as at best a simple > movement > disorder, and at worst a psychiatric disturbance, with all that the > implies. And > it is certainly not seen as a disorder of the young. > > Jim > ---------------------------------------- > Doctor J.F. Slattery PhD Soc Sc > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn