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Yes, I fully agree. Many caregivers eventually give up, no matter how loving they are.

I don't mean to offend Parkinson's patients - one thing I know is that it is much tougher to care for Parkinson's patients than other neurological disorders.

Dr Chew  



> Date: Mon, 17 Aug 2009 02:01:00 -0700
> From: [log in to unmask]
> Subject: Re: a thought
> To: [log in to unmask]
> 
> Moneesha,
> 
> 
> 
> Time is the villain here.  Even the informed family may start out with a
> caring attitude but eventually feel overwhelmed. 
> 
> 
> 
> -------Original Message-------
> 
>  
> 
> From: Moneesha Sharma
> 
> Date: 8/16/2009 11:01:58 PM
> 
> To: [log in to unmask]
> 
> Subject: Re: a thought
> 
>  
> 
> Dr. Chew,
> 
> Our experience here in Calcutta is that though
> 
> education about the illness among the general populace is non-existent,
> 
> there is no shortage of a caring attitude towards someone who is seen as
> 
> being unwell.  Often, however, it is the immediate family that is uninformed
> 
> and therefore perhaps lacking in true empathy.  There is impatience with the
> 
> patient.  That is why I posted those beatitudes for the PD caregiver - they
> 
> are a wonderful reminder.
> 
> Moneesha
> 
>  
> 
>  
> 
>  
> 
> 2009/8/16 chew nee kong <[log in to unmask]>
> 
>  
> 
> > Dear Moneesha
> 
> >
> 
> > You are absolutely right. There is no point in saying something nice to
> the
> 
> > Parkinson's patients if it does not come from our heart.
> 
> >
> 
> > Empathy and compassion for the Parkinson's community are seriously lacking
> 
> > in my country. Based on my own experience, even some of our NGO's who
> claim
> 
> > to love Parkinson's patients are actually doing it for their own personal
> 
> > gains - I guess it is hard to find people who are truly compassionate.
> 
> >
> 
> > But I am very happy that the PIEN is going on well - it is one of the best
> 
> > ways for the world Parkinson's community to reach out to and care for each
> 
> > other.
> 
> >
> 
> > Dr Chew
> 
> >
> 
>  
> 
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