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Here in KS, we are almost done with something we are calling the "one in a million challenge" tag line: For more than a million Americans with PD, simple daily tasks can be major obstacles. What would it be like if you were in their shoes? Take this simple challenge and find out. (early thoughts!) So, we are still in development, but have a velcro walk - as it sounds, long velcro carpet with velcro shoes to simulate feet stuck to the floor. We have a bunch of very cool cognition tests, which we have people do then we distract them or make them much more dificult to simulate loss of executive function - just trying to show how much harder it is to walk through the world with PD. Doing some adl stuff - get coupons, get money, sign a check, timed and with added issues like a pen that vibrates and super small lines to write in. Button, buckle, lace, zip - all of it just a bit harder, we've had some gloves made for people to put on for those tasks. Anyway, you probably get the idea. We are going to travel with this - to places that don't usually care about PD - like outdoor music fests and places where the young and partyish hang out - hoping to give them an experience that they will remember and bring them aboard to our cause. Its fun and quite a moving experience - feedback is all good so far. So - all this is to say that I am thinking the Tshirt, super duper pain in my brain etc.. might really be a fabulous and fun kind of thing. I'm sure if you did it in some very cool and graphic way, you could get young people asking other young people ( substitute trendy, engaged, interested, philanthropic, anyone with time. money, energy and passion for young) asking about the shirt and what it means. I'm loving the super duper pain in my brain vibe... I'd also love ideas. We are trying to invent the simulations, trial and error so far, and would love ideas. We have some cash to devote to this, and really want to make it a very professional, profoundly moving experience. Thoughts anyone??? Love you guys one and all! Meg ________________________________ From: Parkinson's Information Exchange Network on behalf of Kathleen Cochran Sent: Mon 8/17/2009 7:55 AM To: [log in to unmask] Subject: Re: A more suitable name for PD. I see T shirts! Kathleen 2009/8/17 Moneesha Sharma <[log in to unmask]> > Love this! > Moneesha > > > > 2009/8/17 MyFirstname Mylastname <[log in to unmask]> > > > I totally agree............let's not lose sight of what needs to be done > > here......a cure and not a new name. > > It's difficult enough raising funds for research for a disease we can > > pronounce...........Try raising awareness for the > > > > > SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I'veBeenHitByaTruckThisDiseaseReallySucks > > Research Foundation. > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn