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Good grief, Ray. You really do have a little ornery streak hiding inside, don't you??? LOLOL Sami -------Original Message------- From: rayilynlee Date: 8/18/2009 11:03:24 PM To: [log in to unmask] Subject: Re another simulation tie their ankles together and tell them to walk. this would be good, I think, as they would be forced to take short shuffling steps and would trip themselves. one hand tied behind back would be a nice touch. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Duggan, Meg" <[log in to unmask]> Sent: Monday, August 17, 2009 11:54 PM To: <[log in to unmask]> Subject: Re: A more suitable name for PD. And an idea you can help with!! > Here in KS, we are almost done with something we are calling the "one in a > million challenge" tag line: For more than a million Americans with PD, > simple daily tasks can be major obstacles. What would it be like if you > were in their shoes? Take this simple challenge and find out. (early > thoughts!) > > So, we are still in development, but have a velcro walk - as it sounds, > long velcro carpet with velcro shoes to simulate feet stuck to the floor. > We have a bunch of very cool cognition tests, which we have people do then > we distract them or make them much more dificult to simulate loss of > executive function - just trying to show how much harder it is to walk > through the world with PD. Doing some adl stuff - get coupons, get money, > sign a check, timed and with added issues like a pen that vibrates and > super small lines to write in. Button, buckle, lace, zip - all of it just > a bit harder, we've had some gloves made for people to put on for those > tasks. Anyway, you probably get the idea. We are going to travel with > this - to places that don't usually care about PD - like outdoor music > fests and places where the young and partyish hang out - hoping to give > them an experience that they will remember and bring them aboard to our > cause. Its fun and quite a moving experience - feedback is all good so > far. > > So - all this is to say that I am thinking the Tshirt, super duper pain in > my brain etc.. might really be a fabulous and fun kind of thing. I'm sure > if you did it in some very cool and graphic way, you could get young > people asking other young people ( substitute trendy, engaged, interested, > philanthropic, anyone with time. money, energy and passion for young) > asking about the shirt and what it means. > > I'm loving the super duper pain in my brain vibe... > > I'd also love ideas. We are trying to invent the simulations, trial and > error so far, and would love ideas. We have some cash to devote to this, > and really want to make it a very professional, profoundly moving > experience. Thoughts anyone??? > > Love you guys one and all! Meg > > ________________________________ > > From: Parkinson's Information Exchange Network on behalf of Kathleen > Cochran > Sent: Mon 8/17/2009 7:55 AM > To: [log in to unmask] > Subject: Re: A more suitable name for PD. > > > > I see T shirts! > > Kathleen > > > > 2009/8/17 Moneesha Sharma <[log in to unmask]> > >> Love this! >> Moneesha >> >> >> >> 2009/8/17 MyFirstname Mylastname <[log in to unmask]> >> >> > I totally agree............let's not lose sight of what needs to be >> > done >> > here......a cure and not a new name. >> > It's difficult enough raising funds for research for a disease we can >> > pronounce...........Try raising awareness for the >> > >> > >> SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I veBeenHitByaTruckThisDiseaseReallySucks >> > Research Foundation. >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: mailto: >> > [log in to unmask] >> > In the body of the message put: signoff parkinsn >> > >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ____________________________________________________________ No virus found in this incoming message. 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