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Tie their ankles together and tell them to walk. this would be good, I think, as they would be forced to take short shuffling steps and would trip themselves. One hand tied behind back would be a nice touch. Ray, this is really a good one. I think this can be a good idea - I will suggest to my colleagues to include this as one of the programs in the next World PD Day event at Malaysia. I am sure the Press will be happy to take a photo of healthy volunteers on the stage taking part in this PD simulation. Recently a group of students walked blindfolded in the street to promote awareness of the blind people. NK > Date: Wed, 19 Aug 2009 11:52:25 -0700 > From: [log in to unmask] > Subject: Re: Re another simulation > To: [log in to unmask] > > Sami > > guilty as charged!! I just think PD is an ornery, wicked disease, not the > worst maybe, but bad enough. > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > -------------------------------------------------- > From: "Sami" <[log in to unmask]> > Sent: Wednesday, August 19, 2009 1:47 AM > To: <[log in to unmask]> > Subject: Re: Re another simulation > > > Good grief, Ray. You really do have a little ornery streak hiding inside, > > don't you??? LOLOL > > > > Sami > > > > -------Original Message------- > > > > From: rayilynlee > > Date: 8/18/2009 11:03:24 PM > > To: [log in to unmask] > > Subject: Re another simulation > > > > tie their ankles together and tell them to walk. this would be good, I > > think, as they would be forced to take short shuffling steps and would > > trip > > themselves. one hand tied behind back would be a nice touch. > > > > Ray > > > > Rayilyn Brown > > Director AZNPF > > Arizona Chapter National Parkinson Foundation > > [log in to unmask] > > > > -------------------------------------------------- > > From: "Duggan, Meg" <[log in to unmask]> > > Sent: Monday, August 17, 2009 11:54 PM > > To: <[log in to unmask]> > > Subject: Re: A more suitable name for PD. And an idea you can help with!! > > > >> Here in KS, we are almost done with something we are calling the "one in > >> a > >> million challenge" tag line: For more than a million Americans with PD, > >> simple daily tasks can be major obstacles. What would it be like if you > >> were in their shoes? Take this simple challenge and find out. (early > >> thoughts!) > >> > >> So, we are still in development, but have a velcro walk - as it sounds, > >> long velcro carpet with velcro shoes to simulate feet stuck to the floor. > >> We have a bunch of very cool cognition tests, which we have people do > >> then > >> we distract them or make them much more dificult to simulate loss of > >> executive function - just trying to show how much harder it is to walk > >> through the world with PD. Doing some adl stuff - get coupons, get > >> money, > >> sign a check, timed and with added issues like a pen that vibrates and > >> super small lines to write in. Button, buckle, lace, zip - all of it > >> just > >> a bit harder, we've had some gloves made for people to put on for those > >> tasks. Anyway, you probably get the idea. We are going to travel with > >> this - to places that don't usually care about PD - like outdoor music > >> fests and places where the young and partyish hang out - hoping to give > >> them an experience that they will remember and bring them aboard to our > >> cause. Its fun and quite a moving experience - feedback is all good so > >> far. > >> > >> So - all this is to say that I am thinking the Tshirt, super duper pain > >> in > >> my brain etc.. might really be a fabulous and fun kind of thing. I'm > >> sure > >> if you did it in some very cool and graphic way, you could get young > >> people asking other young people ( substitute trendy, engaged, > >> interested, > >> philanthropic, anyone with time. money, energy and passion for young) > >> asking about the shirt and what it means. > >> > >> I'm loving the super duper pain in my brain vibe... > >> > >> I'd also love ideas. We are trying to invent the simulations, trial and > >> error so far, and would love ideas. We have some cash to devote to this, > >> and really want to make it a very professional, profoundly moving > >> experience. Thoughts anyone??? > >> > >> Love you guys one and all! Meg > >> > >> ________________________________ > >> > >> From: Parkinson's Information Exchange Network on behalf of Kathleen > >> Cochran > >> Sent: Mon 8/17/2009 7:55 AM > >> To: [log in to unmask] > >> Subject: Re: A more suitable name for PD. > >> > >> > >> > >> I see T shirts! > >> > >> Kathleen > >> > >> > >> > >> 2009/8/17 Moneesha Sharma <[log in to unmask]> > >> > >>> Love this! > >>> Moneesha > >>> > >>> > >>> > >>> 2009/8/17 MyFirstname Mylastname <[log in to unmask]> > >>> > >>> > I totally agree............let's not lose sight of what needs to be > >>> > done > >>> > here......a cure and not a new name. > >>> > It's difficult enough raising funds for research for a disease we can > >>> > pronounce...........Try raising awareness for the > >>> > > >>> > > >>> SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I > > veBeenHitByaTruckThisDiseaseReallySucks > >>> > Research Foundation. > >>> > > >>> > ---------------------------------------------------------------------- > >>> > To sign-off Parkinsn send a message to: mailto: > >>> > [log in to unmask] > >>> > In the body of the message put: signoff parkinsn > >>> > > >>> > >>> ---------------------------------------------------------------------- > >>> To sign-off Parkinsn send a message to: mailto: > >>> [log in to unmask] > >>> In the body of the message put: signoff parkinsn > >>> > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > >> > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ____________________________________________________________ > > > > > > No virus found in this incoming message. > > Checked by AVG - www.avg.com > > Version: 8.5.392 / Virus Database: 270.13.61/2312 - Release Date: 08/18/09 > > 18:05:00 > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn _________________________________________________________________ Share your memories online with anyone you want. http://www.microsoft.com/malaysia/windows/windowslive/products/photos-share.aspx?tab=1 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn