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Kathryn you describe your father's assisted living situation as "relatively good". I'm wondering, does he concur? For me, assisted living would be intolerable. Enjoying myself is really not something I'm capable of now, let alone in a nursing home. What are the big issues he can do nothing about? Do you think he might be happier in his own home, especially since you say his movement issues are minimal. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "Kathryn Temple" <[log in to unmask]> Sent: Monday, August 24, 2009 5:48 AM To: <[log in to unmask]> Subject: Re: a thought to think about > What I have learned about this disease is that everyone is different. My > dad does have the "rigid thinking" described here, but it is more like > obsession than what I would call rigid thinking. He gets very upset about > certain issues and can't let go of them, even gets so agitated that he can > get his entire assisted living unit agitated. I am taking him to a new > neurologist tomorrow and hoping that a change in meds may help. I hate to > see him so upset about issues that he can do nothing about when his > situation is actually relatively good and he could be enjoying himself. > > His movement issues are minimal. > > I think the emotional side is related to dopomine deficiency which > probably strikes different people differently. His last neurologist also > said that he had significant frontal lobe damage, so perhaps that is a > cause? > > One thing that is lost on a list like this is that we don't hear from > people like my dad since it has been a while since he could understand how > to get on line or communicate through an email or listserv. But they are > out there and suffering. > > Kathy Temple > > rayilynlee wrote: >> I agree Kathleen. In my experience I don't find PWP any different in >> their thinking than the general population. Furthermore, >> "rigid thinking" or no thinking seems to be mostly characteristic of >> uneducated people. >> >> Ray >> >> Rayilyn Brown >> Director AZNPF >> Arizona Chapter National Parkinson Foundation >> [log in to unmask] >> >> -------------------------------------------------- >> From: "Kathleen Cochran" <[log in to unmask]> >> Sent: Sunday, August 23, 2009 6:30 AM >> To: <[log in to unmask]> >> Subject: Re: a thought >> >>> Just a reminder: for many of us on this list, "they"(PWP) = "us" ...a >>> highly >>> idiosyncratic, one size does NOT fit all, us. >>> >>> I can only speak for myself, but for me, a characterization of PWP as >>> "rigid >>> in their thinking" is not helpful. >>> >>> No offense, Mary Ann. I appreciate your contributions very much. :-) >>> >>> It's just that—again, speaking only for myself—there's a fine line where >>> caregiver discussions become counterproductive for PWP and IMHO we are >>> skirting that line. >>> >>> Kathleen >>> >>> >>> 2009/8/22 Mary Ann Ryan <[log in to unmask]> >>> >>>> Sami, you have described one of the symptoms common to PWP. They >>>> become >>>> extremely rigid in their thinking and refuse to accept another opinion. >>>> You >>>> are wise to just 'be there' for your friend - there is little else you >>>> can >>>> do to comfort him. >>>> -------- >>>> God bless >>>> Mary Ann >>>> www.bentwillowfarm.org >>>> ----- Original Message ----- From: "Sami" <[log in to unmask]> >>>> To: <[log in to unmask]> >>>> Sent: Friday, August 21, 2009 3:53 PM >>>> Subject: Re: a thought >>>> >>>> >>>> Hi Mary Ann, >>>>> >>>>> >>>>> >>>>> I'm sure it was included in the tests he started. Unfortunately, he >>>>> thought >>>>> he knew more than his physicians and has refused to go to any doctor >>>>> whatsoever since before I began helping him. He now is convinced he >>>>> is >>>>> turning to stone and other than listening to him and doing his >>>>> errands, I >>>>> have given up making suggestions since he then turns away from me too. >>>>> >>>>> >>>>> >>>>> Sami >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> Sami, one of the first signs of PD is depression. I'm wondering if >>>>> your >>>>> friend is being treated for the disorder? >>>>> >>>>> -------- >>>>> >>>>> Mary Ann >>>>> >>>>> www.bentwillowfarm.org >>>>> >>>>> >>>> ---------------------------------------------------------------------- >>>> To sign-off Parkinsn send a message to: mailto: >>>> [log in to unmask] >>>> In the body of the message put: signoff parkinsn >>>> >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn