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Dr. Janus, Please don't think I'm trying to discourage your thoughts on changing the name of PD....I'm not. But wouldn't changing the name (or even the initials) of Parkinson's Disease confuse people? I am, of course assuming that the majority of the population recognizes the name by now. It seems to me that if it were changed to Dopamine Deficiency Disease, most of the aware population would assume that a new disease had arrived to threaten them. If the initials were to be used, wouldn't that cause confusion among people who now believe DDD stands for Degenerative Disc Disease? Sami Clark -------Original Message------- From: [log in to unmask] Date: 8/22/2009 11:00:29 PM To: [log in to unmask] Subject: Re: PARKINSN Digest - 18 Aug 2009 to 19 Aug 2009 - Special issue (#2009-271) Hi there --- I am a 70 yr old Anesthesiogist who has spent much effort during the past few years in a perersonal and Intense but largely ineffective battle against what was called Parkinson's Disease. Despite years of research there has been limited improvement in the long term control of disability. There is unrelenting progression of motor and cognitive dysfunction. The result has been failure of efforts to block the extention of neurologic cellular dysfunctioln. Often areas of the CNS were undergoing destruction of cells which had lost the ability repair damaged cells. Therefore--it makes sense to use a name that reflects more of the pathophysiolgy of all elements of the disease. eg Dopamine Deficiency Disease. The result would have been the discovery that there were two basic disease templates: The larger and dominant one would continue to develop complex neuropathological models using techniques developed in the "nanolabs" of the future (eg bradykinesia, rigidity, speech and visual distortion). To make the process effective we need more support and recognition of the true nature of the illness. Kenneth M.Janis, MD Clinical Professor Emeritus Deartment of Anesthesiology University of New Mexico ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ____________________________________________________________ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.392 / Virus Database: 270.13.64/2320 - Release Date: 08/22/09 18:04:00 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn