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John and Barbara- I too thank you profusely for your dedication to your "Labor of Love" in keeping this Parkinson's exchange sight alive and well. You keep the format sound and simple to better exchange information and experience of all of us that are coping with PD. Can you please refer me to the information you have on MUCANA PRURIENS. I do not recall seeing anything about them. Apparently they grow well in Texas where I live so maybe I can play a round with growing them if they are needed. We never know from where a cure or treatment may come. Thanks again, Roy Morris > Date: Thu, 10 Sep 2009 08:09:57 -0500 > From: [log in to unmask] > Subject: Re: Parkinsn Copyright Issues Explained > To: [log in to unmask] > > We love you John and Barbara for your "labor of love:>)" and are very > thankful to have found this Parkinson's exchange! > So much information out there... it definitely takes a while to go thru all > the messages and absorb some of this stuff. > > Fyi: we are growing mucana pruriens the velvet bean, here in texas, with > info from your listserv. Fresh L-dopa~ mmmm. > Thank you moneesha and dr jim slattery:>) > > Our 21 plants are loaded with bean pods. > They are being grown in several different locations here, some on fencing, > tomato cages, and poles. > 9 of them get only occasional drip irrigation, others get both drip and pop > up watering, as it is still hot here. > Suppose to cool down into the 80's next week. > The 3 heart shaped leaves are amazingly huge and quite good looking as they > vine around and grab ANYTHING in their path... > The huge seed pods are covered in purple velvet and look > itchy.....ewwwwweeeee...... We will wear gloves when handling. > > Some pods are getting ready to be harvested and dried, then packaged for > consumption. > And then the big test... trial and error... dear alan... > just kidding,,, alan is asking for more information and will make up his > mind about eating them then. > > if you've tried eating these beans before, please share your results. > we would appreciate info from anyone, with fresh velvet bean experience on > harvesting, storing, using, and measuring results. > I am a basic, organic mostly home farmer and need all the guidance I can > get. > > hope to post some pictures and link them into a message. > > with thanks > > patti cg16 > > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of John Cottingham > Sent: Thursday, September 10, 2009 2:31 AM > To: [log in to unmask] > Subject: Parkinsn Copyright Issues Explained > > Barbara Patterson and I and the University of Toronto provide a place > for neurological challenged persons to network. For Barbara and I it > is and will continue to be a "labor of love". We have a sponsor on > the faculty at the University of Toronto who has no connection to Parkinsn. > > Last year about November I received an email from an attorney of a > publisher saying that we unlawfully published one of their works and > archived it. They demanded a cease and desist and its removal. > > Utoronto maintains an archive of every messages posted to Parkinsn. > The Parkinsn website does also. > > I prompted edited the offended email from a member and advised the > attorney within hours. I thought it was over. > > This Spring the Utoronto tried to contact Barbara and I with no > success due to computer failure here in the Philippines and at > Barbara's. The Listserv Manager became involved along with Parkinsn's > faculty adviser. > > The manager became involved with the copyright holder and it looked > to them we weren't doing a good job holding the Utoronto harmless. > > To make a long story short, my left DBS quit working and it was > difficult typing with one hand flopping around on the keyboard. > > I sent the Utoronto all the correspondence I had with the attorney > and my immediate compliance with the archive on the website here. We > were at loggerheads who was responsible to edit the listserv messages > in question. With great difficulty due to the lack of dexterity I > edited the messages. > > Those of you that have become acquainted with me over the years know > that my frank manner gets me into trouble. In the end, in order to > save our Parkinsn home I kissed the ring of our friends at Utoronto > and promised to never again transgress. > > COPYRIGHT > > Our community is thirsty for news but we have a dilemma, we cannot > post verbatim news articles and still be responsible for copyright. > > Posting of an analysis or opinion about a news article and providing > a link to that story is permitted. > > Long addresses do not translate well in a text environment like we > have in Parkinsn. TinyURL.com will shorten the address. If you post a > lot, put a link on your browser that will shorten it so that it > doesn't wrap in email. > > My job here is purely technical but occasionally follow a thread and > when no one is offended and emails me I let things go. > > Everyone of you are appreciated and we all have down days and there > are some who were hard to deal with before they became diagnosed. > Some have a pile of money and others sleep under the bridge. Hopes > and dreams abound for all just different priorities. My money went to > those who didn't need it so instead of fighting for a piece of > cardboard to lay my head on sleeping under a bridge I became an > economic refugee and have never looked back. > > If you have a pile of money spend it, let the kids make their own > destiny. For those of us that have nothing but dreams, maybe we will > see better days. That's what hope is about. > > John Cottingham > co-owner Parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn