In a message dated 7/21/2009 9:01:43 P.M. Pacific Daylight Time, [log in to unmask] writes: There are 9 messages totalling 818 lines in this issue. Topics of the day: 1. Vision Problems in PD 2. Exercise Tips 3. Fw: Forced exercise for Parkinson's - video 4. Lack of Centenarians with PD; DBS Surgery Methods 5. Scolosis Prevalent in PD 6. coffee: the superdrink (2) 7. Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday... 8. Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday Science ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn In a message dated 7/21/2009 9:01:43 P.M. Pacific Daylight Time, [log in to unmask] writes: There are 9 messages totalling 818 lines in this issue. Topics of the day: 1. Vision Problems in PD 2. Exercise Tips 3. Fw: Forced exercise for Parkinson's - video 4. Lack of Centenarians with PD; DBS Surgery Methods 5. Scolosis Prevalent in PD 6. coffee: the superdrink (2) 7. Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday... 8. Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday Science ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- Date: Mon, 20 Jul 2009 20:07:42 +0530 From: Moneesha Sharma <[log in to unmask]> Subject: Re: Vision Problems in PD Thanks Jim, As always, you have posted something so useful. Prem has a lot of trouble with his vision and the neuro-ophthalmologist whom we consulted said that his double vision was due to the Parkinson's. Apparently he has a squint that can be either in one eye or the other so no correction, such as with a prism, is possible. He too suggested covering one lens of his reading glasses while reading. Prem is trying to get accustomed to that. I imagine, though, that he will find it difficult to cope with three different pairs of spectacles, however excellent the suggestion. Thanks again. Moneesha Calcutta, India ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 08:26:51 -1000 From: Kevin Lockette <[log in to unmask]> Subject: Re: Exercise Tips Thanks for your note Tom. Below is another chapter from the Move It projec= t (www.parkinsonsmoveit.com) that is relevant to most folks. It is the text version (without photos/illustrations). Much aloha, Kevin CHAPTER EIGHT LEVEL TWO: Moderate symptomatic (Impaired balance requires assistive device.) This group of exercises is good for those of you with minimal to moderate impaired balance. These exercises may also require more complex movements involving multiple limbs that require greater coordination than more simple exercises. If you have a history of falling and/or use an assistive device that requires just one hand such as a cane, you may find these exercises appropriate. You may also modify the more advanced leg and balance exercise= s by using some support of your arms. If your balance is impaired to the leve= l that does not allow for you to safely perform exercises in stance, please proceed to the sitting and mat exercises (Level one). . The recommendation is to start out with 1 set of 10 repetitions for each exercise and build up to performing 2-3 sets of 10 as you can tolerate it. I suggest that you also break up the exercises into different days so that you are not performing such a large volume of exercises at one time. = One suggestion is to perform the sitting exercise on opposite days of the mat exercises. A good schedule would be to perform the sitting group on Monday= , Wednesday, Friday and the mat exercise group on Tuesday and Thursdays. The following week, you can then reverse the days. I also recommend that you limit your time to spending 20-30 minutes maximum per exercise session. It is much better to get into the habit of exercising daily for 15-20 minutes than not exercise daily and try to do too much to make up for missing days. If you do not get through all of the exercises in the list, just pick up where you started on the next day when you perform that group (sitting or mat) exercise. SUGGESTED EXERCISE LIST: a. Modified Standing Exercise routine. 1.) Static wall standing with chair 2.) Wall standing arm raise 3.)Wall standing arm diagonals 4.)Wall squats with chair b. Mat exercise routine 1. Bridges 2. Lower Trunk Rotation 3. Supermans 4. Airplanes STANDING WALL EXERCISES * *The standing exercises in this category will require the ability for general balance with or without the need for upper extremity support. If your balance is impaired to the level that does not allow you to safely perform the standing exercises, please proceed to sitting and mat exercises= . * * Static Wall Standing *INSERT Chapter 8 Image 1* EXERCISE POSITION: Stand with heels, buttocks, shoulders and head against wall and hold posture for 30 seconds. PURPOSE: The emphasis is on promoting an erect posture. The contact with the wall gives the postural muscles feedback and a guide. The tendency is for the PD symptoms to want to pull you forward. Many of you may feel like someone is behind you pushing you forward as your muscles may not be used t= o holding you up straight. If you can retrain your muscles to maintain a mor= e erect posture, your skeletal system will be more mechanically stacked actually requiring less energy to maintain an upright position. * * EXERCISE MODIFICATION FOR DECREASED BALANCE:* You c*an also perform the above exercise with a walker or tall back chair turned around and in front of you. Try to minimize the weight-bearing through your arms, but you have the comfort of the support for safety. *INSERT Chapter 8 Image 1B static wall standing with chair* Wall standing arm raise *INSERT Chapter 8 Image 2A and 2B and 2Cwall standing arm raise* START POSITION: Stand with heels, buttocks, shoulders and head against wall. Bring up your arms to where your elbow is same level as your shoulde= r with your elbow bent to 90 degrees. Maintain as much contact of your arms with the wall as possible. ACTION/FINISH POSITION: Pinch your shoulder blades together and maintain full contact with the wall as you slowly raise your arms overhead until you= r elbows are completely straight. Hold this position for 10 seconds and slowly return back to start position. PURPOSE: To stimulate and work the postural muscles as you move your arms. This exercise also promotes stability of your scapular muscles which will assist in maintaining functional strength and range of motion in your arms for activities of daily living. Wall standing alt leg lift *INSERT Chapter 8 Image 3A and 3B* START POSITION: Stand with heels, buttocks, shoulders and head against wall. ACTION/FINISH POSITION: While maintaining contact with the wall, purposely shift your weight to the right leg and lift the opposite leg (left). Return to starting position and perform to opposite side and repeat by alternatly lifting your legs. PURPOSE: To stimulate and work the postural muscles as you shift weight to off load your opposite leg. This exercise promotes good posture while you move dynamically and trains you in =93anti-freezing techniques=94 by consciously, purposely engaging in controlled movement. EXERCISE MODIFICATION FOR DECREASED BALANCE:* You c*an also perform the above exercise with a walker or tall back chair turned around and to the side of you. Try to minimize the weight-bearing through your arms, but you have the comfort of the support for safety. * * Wall Standing Diagonals *INSERT Chapter 8 Image 4A and 4B* Intermediate START POSITION: Stand with heels, buttocks, shoulders and head against wal= l with hands over opposite hip. ACTION/FINISH POSITION: Maintaining contact with the wall during the exercise. Pinch your shoulder blades together while lifting your arms simultaneously in a diagonal position until your arms are overhead with elbows extended. PURPOSE: To stimulate and work the postural muscles as you move your arms. This exercise also promotes stability of your scapular muscles which will assist in maintaining functional strength and range of motion in your arms for activities of daily living. Wall standing squats *INSERT Chapter 8 Image 5A and 5B* START POSITION: Stand with heels approximately 18 inches away from the wal= l with your buttocks, shoulders and head against wall. ACTION/FINISH POSITION: Maintain your buttock, shoulders, and head in contact with the wall while you slide down the wall. The bottom of the squat position will be dictated by your strength, but you should not squat deeper than 90 degrees at the hip which is when your hip and knees are at the same level. The deeper the squat, the greater strength is required. O= ne modification is to place your feet further away from the wall which decreases weight-bearing there to make the exercise easier. PURPOSE: To stimulate and work the postural muscles, in particular hip extensors (gluteals) and knee extensors (quadriceps). MAT EXERCISES * *The mat exercises do not require very much balance and are appropriate for everyone as long as you can achieve the required positions. The positions that may be the most difficult to achieve are the exercises requiring for you to lie on your stomach. The focus of mat exercises are the same as the wall exercises, which is to encourage purposeful movement and to strengthen the postural muscles to better combat the forward posturing and other related PD symptoms. Supine (Lying on Back) Bridges *INSERT Chapter 8 Image 6A and 6B* START POSITION: Lie down on your back with your elbows in contact with the bed or mat and arms resting on stomach or with arms crossed on chest. Thes= e alternate arm positions lessen the contact of the upper extremities making the exercise more challenging. Bend both of your knees to where your feet are flat on the mat or bed. ACTION/FINISH POSITION: Hold your stomach tight as you squeeze your buttock= s muscles and lift your buttocks as high off the mat or bed as possible. Hol= d the bridge position for 5 seconds and return to starting position. PURPOSE: This exercise focuses on the postural muscles for hip and back extension. Your hip and back extensors will aid you in maintaining the strength and motion for a more upright posture. * * Lower trunk rotation (Wind shield washers):** *INSERT Chapter 8 Image 7A and 7B* Beginning START POSITION: Lie down on your back with your arms extended by your side= . Bend both of your knees to where your feet are flat on the mat or bed. ACTION/FINISH POSITION: Maintain your shoulders in contact with the bed during the entire exercise. While keeping your knees and feet together, roll your knees as far to the right as possible (You will feel a stretch on the opposite side). Hold for 3 seconds and then roll your knees as far as possible to the left side. Return to starting position and then repeat for the desired amount of repetitions. PURPOSE: This exercise focuses on trunk rotation. Flexibility in your trunk or pelvic rotation is essential for maintaining an efficient gait or walking pattern as well as general mobility such as getting in and out of a car or out of bed. * * Superman *INSERT Chapter 8 Image 8A and 8B* START POSITION: Lie flat on your stomach with your arms hanging down over the edge of your mat or bed. ACTION/FINISH POSITION: Lift your arms straight up in front of you as high as you can as if you are flying like superman. Hold this position for 5 seconds and repeat to complete the desired amount of repetitions. Keep your head and neck neutral with your eyes gaze straight down. Do not look or gaze forward which will hyper-extend your neck. PURPOSE: To stimulate the postural muscles in your upper back (posterior shoulder and scapular muscles. Strength in these muscles will greatly aid your posture and assist you in preventing the rounded shoulders and tendenc= y for =93forward posturing=94. This also aids in maintaining the flexibility needed in your shoulders for activities of daily living such as upper extremity dressing, bathing and grooming. * * Airplane *INSERT Chapter 8 Image 9A & 9B* START POSITION: Lie flat on your stomach with your arms hanging down over the edge of your mat or bed. ACTION/FINISH POSITION: Lift your arms out to side with your wrist, elbow and shoulders in the same plane as high as you can as if you are flying lik= e an airplane. Hold this position for 5 seconds and repeat to complete the desired amount of repetitions. Keep your head and neck neutral with your eyes gaze straight down. Do not look or gaze forward which will hyper-extend your neck. PURPOSE: To stimulate the postural muscles in your upper back (posterior shoulder and scapular muscles. Strength in these muscles will greatly aid your posture and assist you in preventing the rounded shoulders and tendenc= y for =93forward posturing=94. This also aids in maintaining the flexibility needed in your shoulders for activities of daily living such as upper extremity dressing, bathing and grooming. On Sun, Jul 19, 2009 at 1:56 AM, Tom Clift <[log in to unmask]> wrote: > Kevin, > > This post is most timely for me. I would appreciate any other informatio= n > you would be willing to share. > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 18:31:05 -0700 From: rayilynlee <[log in to unmask]> Subject: Fw: Forced exercise for Parkinson's - video Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] From: Diane Wyshak=20 Sent: Monday, July 20, 2009 5:35 PM To: ray ; chew Nee Kong=20 Subject: Forced exercise for Parkinson's - 7/20/09 - New York News and = Tri-State News - 7online.com http://abclocal.go.com/wabc/story?section=3Dnews/health&id=3D6924201 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 15:05:39 +0200 From: Maryse Schild <[log in to unmask]> Subject: Re: Lack of Centenarians with PD; DBS Surgery Methods > If two things were true of PD, that it increases with age and contributes > to > an earlier death than normal, then might we not find few if any cases of PD > in centenarians? > -Ken > in a way yes but you would have to take into account the ones starting around 80 years old and there doesn't seem to be many. so if you reach a ripe old age without PD, chances are you will not develop it although it is supposed to be an old age disease maryse (still without a computer) ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 06:52:51 -0500 From: PATTI ZAPF <[log in to unmask]> Subject: Re: Scolosis Prevalent in PD That's alright. Thank you for reaching out to help:>) kind regards patti On Jul 19, 2009, at 10:58 AM, [log in to unmask] wrote: > Sorry Patti: > > I just saw the link to the brace and the promotion about it and > forwarded > it without any examination of cost. > > Paul > > > > In a message dated 7/18/2009 2:00:39 A.M. Eastern Daylight Time, > [log in to unmask] writes: > > thank you. the SpineCor brace is $5000!!! > we called... > right now alan is getting home health physical therapy 3x week, along > with chiropractic 1x wk, due to a small auto accident over the 4th. > these providers are coming to our home. > the pt has used an ultrasound instrument on alan's lower back and was > able to bring some relief!!! he has also done resistance exercises > on > alan. we have a massage table in our library that makes this > possible. bought the table on craigslist for $150 . > i think the ultrasound instrument costs around $1500 and you have to > be licensed to use it (pt said). alan says the chiropractor brings > him the most relief. this chiropractor is the only one he has found > that brings him relief. i don't think it makes a difference that she > is a female:>) he has tried several chiropractic doctors in our town > and none brought relief like this gal. she is a fairly young, hands > on > doctor and has taken a special interest in alan's needs. lucky us:>) > alan said last night he feels the best he's felt in a long time. too > bad these therapies won't last for ever, as the insurance will run > out. alan will go back to square one, when the therapies end i > suppose. > i wish i could add a picture to this list serve and show you what the > mucana bean looks like. it has a huge leaf and grows 12-15" a day! > curls around everything in its path. i have tall tomato cages around > most of them and keep the runners inside the cage. > no flowers yet, but soon:>) > patti cg15 > > On Jul 16, 2009, at 4:07 PM, [log in to unmask] wrote: > >> Hope this link opens >> >> _Home Page - SpineCor_ (http://www.spinecorporation.com > /English/index.htm >> ) >> >> >> Paul H. Lauer >> >> >> >> >> In a message dated 7/15/2009 2:00:43 A.M. Eastern Daylight Time, >> [log in to unmask] writes: >> >> thank you everyone for your input and help:>) >> my whole life has been when i grow up i'll figure it out, well >> now i >> am grown up and figuring it out is a whole lot easier, with the >> help >> on this amazing exchange. >> best regards to all of you~ >> patti cg 15 >> >> On Jul 14, 2009, at 1:31 AM, mschild wrote: >> >>>> an xray taken from the side view last week , showed an s shape to >>>> his >>>> spine, . a view from the center back was not available. >>>> there is a brace called spine cor that we are trying to find >>>> availability. has anyone used this or bought it? or know how >>>> much it >>>> costs? >>> >>> >>> I have seen many long time PWP with a scliosis. PD very often >>> affects one side >>> more than the other so there is an imbalance between the muscles >>> maintaining >>> the spine. At first it seems it is only malposition but with time >>> it >>> develops >>> into a fixed scoliosis. The leaning on one side can be corrected >>> at >>> first with >>> adequate medication but in the long run it becomes more >>> pronounced, >>> especially >>> when tired. Some days worse than others that is why I don't think a >>> brace >>> would be very helpful unless you have a lot of exercise. Braces >>> usually tend >>> to weaken muscles since they don't have to work anymore to keep >>> posture. >>> JOhn ,after 20 years of PD has a fixed scoliosis. no need to >>> Xray or >>> MRI to >>> confirm something that is obvious. It can also be painful, >>> obviously. >>> The best prevention is exercises for the back. Massage of painful >>> spinal >>> muscles will relieve some of the pain >>> maryse cg JOhn 80 /+-60 >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> >> **************S T R E T C H your technology dollars with great >> laptop >> deals from Dell! >> > (http://pr.atwola.com/promoclk/100126575x1223081712x1201714210/aol?redir=http:%2F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629 >> %2 >> D5) >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: > mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > **************An Excellent Credit Score is 750. See Yours in Just 2 > Easy > Steps! > (http://pr.atwola.com/promoclk/100126575x1222585099x1201462822/aol?redir=http://www.freecreditreport.com/pm/default.aspx > ?sc=668072&hmpgID=62&bcd=Jul > yExcfooterNO62) > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 18:35:36 -0700 From: rayilynlee <[log in to unmask]> Subject: coffee: the superdrink Coffee: the daily superdrink July 20, 9:05 AM Coffee has been in the news as being a good-for-you and bad-for-you substance, and nobody really knows what to believe. There's good news for java drinkers, which is coffee is good for you as long as you don't drink five cups in one sitting. What are the benefits? Brain: Antioxidants help prevent cell damage associated with Parkinson's disease, and caffeine prevents inflammation associated with Alzheimer's disease. Teeth: Coffee that is caffeinated breaks loose bacteria on teeth that cause enamel erosion. Oral cancer risk is also greatly diminished for coffee drinkers. Skin: Caffeine does more than stimulate your nervous system. It also stimulates your body's white blood cells to kill pre-cancerous cells, and the ability to inhibit tumor growth. As little as 2 cups of coffee each day can lower your risk of melanoma. Lungs: Caffeine helps to open constricted airways of asthma patients. The warmth of a cup of coffee also is more soothing to the respiratory system. Cold often shocks the body and makes it want to restrict. Author: Elaina Lee Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 09:39:52 EDT From: Tabatha Dagata <[log in to unmask]> Subject: Re: Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday... I've been taking Azilect for 2-yrs with no side affects or problems. I am on the max dose. Smiles, Tabatha **************What's for dinner tonight? Find quick and easy dinner ideas for any occasion. (http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000008) ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 20 Jul 2009 06:23:08 -0400 From: Norine Stark <[log in to unmask]> Subject: Re: Fw: Azilect, a new weapon to fight against Parkinson's disease | Everyday Science I was also prescribed a dosage of 0.5 mg a day On Mon, Jul 20, 2009 at 2:40 AM, Moneesha Sharma <[log in to unmask]>wrote: > Norine, what dosage were you prescribed? My husband has been prescribed it > too - a 0.5 mg/day dosage. > Moneesha > > > > 2009/7/19 Norine Stark <[log in to unmask]> > > > Interesting - however if you are > > > > > being prescribed Azilect please read the > > food and drug avoidance list - ir's ewtremely long. Also the lit of > > possible uncommon side affects is quite long & I thought scary. > > > > I was prescrived Azilect in late June and within a 2-3 days of taking it > my > > skin began to peel - no I had not been out in the sun. My GP gave it > > a diagnosis of epidural dermatatis & referred me to a dermalogidst who I > > see > > tomorrow > > > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Tue, 21 Jul 2009 16:41:14 +0800 From: chew nee kong <[log in to unmask]> Subject: Re: coffee: the superdrink Dear Ray This is a very interesting article. Whenever I tell people that regular cof= fee / drinking is associated with a lower risk of getting Parkinson's=2C mo= st people don't seem to believe me. It seems that the "side effects" of cof= fee have overshadowed its advantages. Some people told me that they develop= palpitation after drinking coffee but I think this is probably in their mi= nd - the effect of coffee on heart rhythm has been over-publicized and over= -emphasized.=20 There are even some people who avoid drinking more than one cup of coffee -= "coffee-phobia". I am a coffee lover - I drink at least four cups per day. Dr Chew=20 > Date: Mon=2C 20 Jul 2009 18:35:36 -0700 > From: [log in to unmask] > Subject: coffee: the superdrink > To: [log in to unmask] >=20 > Coffee: the daily superdrink > July 20=2C 9:05 AM >=20 > Coffee has been in the news as being a good-for-you and bad-for-you=20 > substance=2C and nobody really knows what to believe. There's good news f= or=20 > java drinkers=2C which is coffee is good for you as long as you don't dri= nk=20 > five cups in one sitting. What are the benefits? >=20 > Brain: Antioxidants help prevent cell damage associated with Parkinson's= =20 > disease=2C and caffeine prevents inflammation associated with Alzheimer's= =20 > disease. >=20 > Teeth: Coffee that is caffeinated breaks loose bacteria on teeth that cau= se=20 > enamel erosion. Oral cancer risk is also greatly diminished for coffee=20 > drinkers. >=20 > Skin: Caffeine does more than stimulate your nervous system. It also=20 > stimulates your body's white blood cells to kill pre-cancerous cells=2C a= nd=20 > the ability to inhibit tumor growth. As little as 2 cups of coffee each d= ay=20 > can lower your risk of melanoma. >=20 > Lungs: Caffeine helps to open constricted airways of asthma patients. Th= e=20 > warmth of a cup of coffee also is more soothing to the respiratory system= .=20 > Cold often shocks the body and makes it want to restrict. >=20 > Author: Elaina Lee >=20 > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] >=20 > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] .ca > In the body of the message put: signoff parkinsn _________________________________________________________________ See all the ways you can stay connected to friends and family http://www.microsoft.com/windows/windowslive/default.aspx= ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ End of PARKINSN Digest - 20 Jul 2009 to 21 Jul 2009 (#2009-238) *************************************************************** ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn