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Esther: are you feeling like a guinea pig? stalevo is the combo drug right? alan tried it and he didn't adjust well and went back to carbidopa 25/100 4 x day, comtan 200mg 4x day, and amantadine 100 mg 3x day. the amantadine causes nightmares and he pulled back one dose, from 4pills to 3 and that helped. he first went off the amantadine and he really slowed down, so he realized he needed it. new doctors, what a pain! another pain, is therapist's trying to do a good job and telling the patient this, this, and this is what most likely is going to happen down the road. many seem to forget how strong the subconscious mind is and planting a seed of worry is a terrible thing, for something that may never occur, even if it does, let it be known then, not beforehand. but all this knowledge they have to share... errrrrrrrrrrrrrrrr. kind regards, patti On Oct 22, 2009, at 1:40 AM, rayilynlee wrote: > Esther > > I tried Stalevo after my DBS and it didn't help me, but then NOTHING > does. Sinemet worked on first dose, but never again. I thought it > and Comtan both contained carbo/levadopa. Either Comtan or Stalevo > gave me strange abdominal "twitches" > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > -------------------------------------------------- > From: <[log in to unmask]> > Sent: Wednesday, October 21, 2009 1:08 PM > To: <[log in to unmask]> > Subject: request for info about Stalevo > >> My husband has been prescribed Stalevo (he has late-stage >> Parkinsons.) A >> new doctor has taken away his long-time drugs: mirapex, Sinemet >> CR (ER) >> and is gradually removing his carbidopa/levodopa. These meds >> changes have >> brought a quite rapid deterioration on all fronts. >> I'm interested if anyone has any experience with Stalevo, positive or >> negative. If so, could you write about it on this list-serv.. >> I haven't posted in some years-- the list-serv appears to have >> been >> hi-jacked by politics and perhaps there is no one on it any more >> who is >> concerned about these actual Parkinsons clinical issues. Anyway, >> if there still >> is, could you post? >> Thanks, >> Esther >> P S, also if anyone has found a more helpful on-line community, >> could you >> post the address for that as well? >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn